5 tips for safe online shopping this holiday season

2022-12-04T12:35:00

(BPT) – Shopping online during the holidays can simplify gift-giving but also leaves you vulnerable to potential fraud. According to the Federal Bureau of Investigation, thousands of people become victims of holiday scams, robbing them of their personal information, money and holiday spirit.

While you know that online scams happen, you may think it’s unlikely to happen to you. You’re not alone. According to a recent fraud research report, nearly half of those surveyed were confident they could recognize a scam. However, nearly 3 in 4 people typically responded to common terms and phrases fraudsters use in scam emails and texts.

Make sure you’re shopping safely this holiday season by using the following online shopping security tips.

1. Pay securely online

As you shop online, take a moment to look at the website’s URL to ensure that it begins with “https.” The “s” at the end confirms a secure connection. You can also look at the corner of the address bar for a padlock symbol, which shows there is a secure connection between your browser and the website’s server.

For Visa card members, you can use click to pay with Visa for an extra layer of protection. This feature allows online shoppers to quickly, easily and safely finish their holiday purchases. You can rest easy knowing there are multiple layers of security that help protect you from payment fraud.

2. Pay securely in-app

While using the same passwords for your shopping apps may be easier, it is not the safest way to shop this holiday season. If a data break occurs on just one of the apps you use, all your other accounts may also be compromised because they use the same password.

Create a strong, unique password for each account that is hard to guess. Better yet, switch to fingerprint or facial recognition for account login and payments when possible.

3. Look out for phishing scams

Be careful of unsolicited and suspicious emails, texts or phone calls. They may try to steal personal information like your account number, username and password.

Phishing messages tend to use phrases like “act now,” “exclusive deal” and “free gift” to create a sense of urgency and reward, according to the fraud report.

If you receive something that looks and sounds like a phishing scam, don’t click on any links unless you can verify they’ll take you where they say they will.

4. Update system and application software

Has it been a while since you’ve updated your technologies’ software? If so, you’re leaving yourself vulnerable to fraudsters while shopping for your friends and family.

Before you begin your online holiday shopping, update the software on your computers, tablets and phones. Installing the latest software helps patch any known vulnerabilities that allow cybercriminals to access your important financial and identity information.

5. Turn on purchase alerts

Purchase alerts are a simple but important security tool. By turning on this feature during your holiday shopping, you’ll receive near real-time notifications of transactions on your account. This can help you confirm legitimate purchases and alert you to potential fraud while you check the last few items off your shopping list.

Using these five simple tips, you can shop safely while making the season jolly and bright for the ones you love. Make this holiday shopping season even safer with Visa. To learn more about how you can shop and pay for gifts safely, visit Visa.com/Security.

What Older Adults Need to Know about COVID-19 to Help Stay Safe this Winter Season

2022-12-02T15:04:36

(BPT) – By: Danielle Hambrick, PharmD

As colder weather drives us to spend more time indoors, it’s critical to plan for the spread of respiratory infections and get vaccinated, especially for those who are the most vulnerable — adults over the age of 65 and those with chronic conditions. The Department of Health and Human Services estimated that among seniors and other Medicare beneficiaries, receiving COVID-19 primary vaccinations and booster doses resulted in 650,000 fewer hospitalizations for COVID-19 last month and had saved 300,000 lives in 2021.[1]

Despite the benefits of vaccination, most older adults have not received the updated bivalent booster,[2] which provides added protection against more recent circulating viral variants.

Keeping older adults safe this winter season should still be a top priority. Here are 5 things seniors should know:

  • COVID-19 is still a public health concern
    • Public health officials are expecting another COVID-19 surge this winter as people gather indoors where the virus spreads easier. The risk of severe illness from COVID-19 increases for people over 60, as older people may have weaker immune systems. They also may be more likely to have conditions or diseases which weaken their body’s ability to fight infections, making them more vulnerable to infectious disease[3] and hospitalizations.
  • Vaccines provide the best protection against COVID-19
    • The updated bivalent COVID-19 booster provides protection against both the original virus that causes COVID-19, as well as the more recent omicron variants that are circulating. Fortunately, the immunity people have built up from vaccinations continues to help protect most from serious illness and death.[4] The Centers for Disease Control and Prevention (CDC) recommends the bivalent booster vaccine for anyone age five years and older as vaccination provides protection even if an individual has already had an infection.[4]
  • The CDC reports that the flu is spreading quickly across the U.S.
    • Public health officials say that flu activity in the U.S. is being recorded higher than it has in the last decade.[5] It’s more important than ever to protect yourself and those around you by getting a flu shot. Yet so far, people are slow to get their flu vaccines compared to the last few years. Flu shots are widely available, and the flu vaccine has been shown to help prevent illness, medical visits, hospitalizations, and deaths. Flu shots are available at Walgreens for anyone age 3 and up.
  • Eligible individuals can get two vaccines for two different viruses in one single visit
    • Individuals can get the flu shot and an updated COVID-19 booster dose or other CDC-recommended routine immunizations during a single visit to save a trip and help reduce community spread of vaccine-preventable illnesses. Annual flu vaccines are advised as flu causes illness in tens of millions of people every year in the U.S. alone. The flu vaccine also protects people from other serious illnesses and complications, like flu-related pneumonia and flu-related heart attacks or stroke, which are especially dangerous for people with diabetes or chronic heart or lung conditions.[6]
  • Vaccines are easy to get at the local pharmacy and can even be scheduled online
    • Pharmacists can serve as a trusted resource to discuss vaccine options for both COVID-19 and flu, as well as other routine immunizations, and answer any questions. Walgreens offers convenient, neighborhood locations and appointments that fit family schedules, including evenings and weekends. Appointments are highly encouraged for the best experience and are easy to schedule online by visiting Walgreens.com/ScheduleVaccine, by downloading the Walgreens app or by calling 1-800-WALGREENS, available in both Spanish and English.

Top 5 highlights from The National Dog Show presented by Purina

2022-12-02T10:01:00

(BPT) – If you’re a fan of all things canine, you probably look forward to watching The National Dog Show Presented by Purina each year even more than the Thanksgiving meal. First airing in 2001 on NBC to celebrate all dogs, the show has turned rooting for your favorite pups into a Thanksgiving tradition for millions of families nationwide over the past 20 years.

More than 1,700 dogs representing nearly 200 breeds competed for Best in Show honors, including three breeds that are newly recognized by the American Kennel Club for this year’s competition: the Mudi, Russian Toy and Bracco Italiano. How do all these dogs stay in great shape for this level of competition? Not only do they participate in years of training with their handlers, but many of the dogs who compete and win at The National Dog Show are fueled by Purina Pro Plan.

Here are some of the highlights of this year’s National Dog Show:

1. Cheer on the best in show. This year’s greatest honor, “Best in Show,” went to Winston, the three-year-old French Bulldog from Bixby, Oklahoma. Winston was the Reserve Best in Show winner at the 2022 Westminster Kennel Club Dog Show. While his handler is Perry Payson, his owners include Sandy Fox, Sandy’s grandson, Morgan Fox, a professional football player, along with Alexandra Vorbeck, Alex Geremia, and Felicia Cashin. Winston is the 12th of the last 12 Best in Show champions to be fueled by Purina Pro Plan.

2. Meet the finalists. After the breed and group competitions, seven group winners moved forward to compete in Best in Show. This year’s group included Sloane, American Water Spaniel (Sporting Group), Nate, the Treeing Walker Coonhound (Hound Group), Reus, Alaskan Malamute (Working Group), Trouble the American Staffordshire Terrier (Terrier Group), Cooper, the English Toy Spaniel (Toy Group), Winston the French Bulldog (Non-Sporting Group) and River, the German Shepherd (Herding Group). All seven of these winners are Purina Pro Plan-fed dogs.

3. Make room for the new breeds. This year’s competition included three exciting new dog breeds. The Mudi (pronounced like “moody”) is known as the “driver dog,” which is an extremely versatile, intelligent, alert and agile all-purpose Hungarian farm dog. The Russian Toy is a small, elegant, lively dog with long legs, fine bones and lean muscles. They are active and cheerful, possessing keen intelligence and a desire to please. The very first dog to be entered into the stud books of the Kennel Club Italiano was the Bracco Italiano, or “Italian Pointing Dog.” It has a powerful appearance, with lean limbs, well-developed muscles, short coat level and a sculpted head.

4. Celebrate the bond between dogs and handlers. The bond between Best in Show winner Winston and his handler Perry Payson is easy to see as they prepare to enter the ring together. It’s important that every handler has a strong bond with the dog they work with to ensure that the dog feels confident and comfortable in the ring. Learning to observe and appreciate the finely tuned interactions between these elite canines and their experienced handlers is part of the fascination of viewing The National Dog Show every year.

5. Admire the preparation. Genetics, years of careful training and high-quality nutrition are the three most important factors that go into dog show preparation, especially when competing at this elite level. Many of The National Dog Show champions are fueled by Purina Pro Plan, including all of the Best in Show finalists. Purina Pro Plan provides the essential nutrients these dogs need to perform their best, and helps give each dog a healthy, shiny coat and bright eyes.

Learn more about your favorite canines in The National Dog Show at Purina.com.

New survey reveals small business leaders are misinformed about ERC tax credit

2022-12-02T12:01:00

(BPT) – By Jay Woods, Founder & President, Omega Accounting Solutions

Small business leaders continue to encounter difficulties and shortages that began during the pandemic. They struggle with labor shortages, supply chain issues, inflation, a potential recession, and insufficient financial guidance while working hard to keep their businesses running.

About the ERC

The federal government drafted up economic parachutes to keep businesses afloat in the aftermath of the COVID-19 pandemic; however, many business leaders are struggling to find the cord. One such program — the Employee Retention Credit (ERC) provides qualified businesses a tax refund to recoup some of the money spent on overpayment of payroll taxes during the pandemic. The ERC allows qualified companies and businesses to reclaim a portion of the money they paid to the IRS in payroll taxes.

The Survey

To better support small business decision-makers, Omega Accounting Solutions commissioned a national study of general managers and executive management team members to determine their thoughts on the ERC. The results demonstrate their disappointment with misinformation and a lack of clarity and even integrity with ERC processors, leaving decision-makers both disillusioned and confused.

“Although the popular Payment Protection Program fund offered about $800 billion in aid to small businesses, the ERC Tax Credit is almost three times that size — approximately 2.1 trillion,” said Jay Woods, Founder and President of Omega Accounting Solutions. “A survey of small business owners revealed most are misinformed about the ERC. With the rolling sunset deadline approaching in early 2023, businesses are running out of time to file. ERC funds may help businesses remain operational during ongoing economic hardship.”

Key Findings

Overall, the survey found that decision-makers are frustrated with the ERC, the U.S. business climate, and a perceived lack of support from financial experts.

Other findings include:

  • 81% of business leaders and decision-makers indicate business is suffering because they don’t have the accounting or financial direction they need
  • 31% of survey respondents say that the tax or financial experts who typically assist with their business’s tax needs did not provide accurate/enough information about the ERC
  • 45% believe they are ineligible to claim ERC benefits because they already applied for a Payment Protection Program (PPP) loan
  • 89% say that between the pandemic, inflation and labor shortages, they feel it is nearly impossible for small businesses to thrive in today’s economy
  • 89% say the surge in operating expenses and/or the cost of goods have made paying employees a competitive wage unaffordable

Omega analysts believe these survey results indicate that small businesses are often underserved when it comes to tax credits. Most executives lack expert guidance in accounting and finance, leaving them to rely on outdated information or form misconceptions that may prevent them from utilizing tax advantages.

Additional Challenges

Adequate ERC guidance is one of the biggest issues for decision-makers but by no means the only obstacle they face. Federal sunset deadlines will begin rolling out in March 2023, shortening the three-year claims window for qualifying businesses in each subsequent quarter. There is also a significant backlog of ERC claimants waiting for their refunds. Current reporting from Experian highlights processing delays resulting in more than 286,000 unprocessed refunds that can take up to a year to reach recipients.

Finding the Right ERC Partner

As many small business leaders have already discovered, successfully claiming the ERC is difficult without the right partner. There is rarely anybody at their side, ready to explain the ins and outs of the process, helping decision-makers to understand the qualification or application process, and ensure their filing is protected in the case of an audit. Fortunately, there are accounting firms that specialize in the ERC, offering support throughout the entire filing process. Small business owners should ask the following five questions before selecting their ERC partner.

  1. Is the company established?
  2. Does the company have experience processing ERC refunds?
  3. Does the company have a thorough qualification process?
  4. Does the company have a proven record of success?
  5. Does the company charge reasonable upfront fees?

Read the Survey

To learn more and explore the rest of Omega’s findings, download the survey now.

What you need to know about caring for your pool during winter months

2022-12-02T16:21:00

(BPT) – Whether or not your pool is closed for winter, the cooler months generally bring a period of reduced pool maintenance. However, that doesn’t mean you can forget about it altogether. Keeping up with pool maintenance through the winter can help make reopening in the spring that much easier, and it may also prevent costly damage to your pool.

Here are tips for keeping tabs on your pool during winter, even when it’s closed.

1. Take care of your pool cover

It’s important to keep your pool cover in good condition so you’ll know it’s doing its job.

  • Remove standing water from the cover with a submersible cover pump to keep it from getting weighed down with rainwater or snowmelt after you close your pool. A heavy cover is more likely to fail under the strain and can fall into the pool.
  • Remove leaves and fallen twigs/branches to reduce the chances of murky water entering the pool, whether due to a cover puncture, or when removing the cover at pool opening time.
  • Inspect your pool cover and cover accessories for damage.
    • Winter cover: Look for rips and tears, and repair or replace as needed.
    • Air pillows/water bags: Make sure they’re full and functional, and replace any if damaged.
    • Cover straps: If you own a safety cover, the straps should be tight and in good condition.

2. Check the pool water

Just observing your pool from the outside isn’t enough to make sure your pool will be in great shape come springtime. Keep an eye on water conditions by peeking under the cover once a month or so to inspect the water and catch potential problems early.

  • Check for leaks: Low water levels can cause all sorts of problems in winter, including structural pool damage and a ruined pool cover.
  • Test the water: Check to see how healthy the water is. If your pool is frozen, don’t worry about it. For temperatures below 60ºF, test the water once a month. For temps between 60–70ºF, test every two weeks. Once temperatures are consistently over 70ºF, consider opening the pool.
  • Add chlorine or shock: Keep the water fresh with sanitizer. If a water test shows that Free Available Chlorine levels are above 2.0 ppm, add chlorine-free shock to oxidize the water and keep the chlorine working efficiently. If levels are lower than that, you may want to consider adding pre-dissolved granular chlorine shock or liquid chlorine to get levels back in the range of 2.0–4.0 ppm.
    • Chlorine lasts longer in winter, because algae and bacteria can’t flourish in colder temperatures.
    • If you add any chemicals, it’s important to circulate the water (see next section).

3. Circulate the pool water

Stagnant water is more prone to sanitization issues. To help keep your pool water in good condition while it’s closed, follow these steps to ensure an easier opening next spring.

  • If you add chemicals, circulate the water to distribute them throughout the pool and prevent stains or discoloration on pool surfaces.
  • Run the pump a few hours each day during colder weather if your pool equipment is still operating, such as with a partially closed or non-closed pool.
  • Agitate water with a pool brush, or use a submersible pump and hose, to move water around the pool for a couple hours a month for fully winterized pools.

Need help? Leslie’s can assist with all your winter pool care needs. From free in-store water testing and water quality recommendations, to equipment inspections and installations, to pool care accessories for the season ahead, Leslie’s can help you get the most from your pool year-round. For more information, tips and resources to help keep your pool in great shape, no matter the weather, visit LesliesPool.com or find a store near you.

Learn about PPP, a rare disease that causes temporary paralysis

2022-12-02T09:00:00

(BPT) – Imagine you’re a college student performing with your musical theater troupe. It’s summertime and swampy-hot at the outdoor venue, and it doesn’t help that you’re wearing a pioneer dress that weighs about 10 pounds. But you’re singing and dancing under the spotlights, and your partner is picking you up to do a dance move.

Exactly then, you begin to go limp. It starts with your hands, which form into a claw-like position. Then your head dangles to the side. All of this happened to Kirsten — a young, healthy and active student who chalked it up to dehydration until she had more episodes in the week and years that followed.

It took three years for Kirsten to discover she had a form of “primary periodic paralysis,” or PPP, a genetic disorder so rare it affects only 5,000 to 6,000 individuals in the United States.

These temporary episodes of severe weakness or paralysis, most often in the arms or legs, can last minutes, hours or even days. Episodes of weakness or paralysis usually start happening in childhood, before age 20. Some people begin having attacks as early as age 2 or even younger. In its most common forms, the episodes are triggered by changes of potassium level in the blood.

Because its symptoms can mimic those of more common conditions, incorrect diagnoses and delays in diagnosis are common. After thinking her first severe episode was an isolated occurrence due to heat and dehydration, Kirsten had two more episodes that same week, and many more after that. She vividly remembers when she was finally diagnosed correctly.

“I vividly remember getting in my car following the appointment and breaking down in tears,” Kirsten recalled. “Everything finally made sense. I felt vindicated, and I finally had proof that I wasn’t making my symptoms up. I had gone through what a lot of other PPP patients go through: a time-consuming, demoralizing and oftentimes frustrating diagnosis process.”

Now, Kirsten wants to raise awareness both about PPP and about helpful resources for people diagnosed with it. At PavingMyPath.com, people with PPP and their loved ones can learn more about the disease, including how it’s managed and how it’s diagnosed. They can find a doctor who diagnoses and treats PPP, learn more about a treatment option, and hear real-life PPP experiences.

They can also learn about PPP Mentor Connect, a phone-based program that lets patients and their caregivers talk on the phone with knowledgeable patients such as Kirsten. The people she speaks with can relate to the impact PPP has had on her life, but they can also find hope in the full life she’s living now as a married attorney who enjoys hiking and skiing. With treatment, Kirsten is having fewer episodes, and when she does, they are shorter and usually limited to one part of her body.

“I didn’t reach out to the PPP community until a few years after my diagnosis, and now I see that that was a mistake on my part,” she said. “I learned so much and felt so validated after eventually reaching out and connecting with others who live with PPP.”

6 tips to prevent winter injuries

2022-12-02T10:01:00

(BPT) – The hustle and bustle of the holiday season can get the best of even the most organized of people, leaving you frazzled and distracted. During the rush of the holiday season, another thing that can be neglected or overlooked is the risk for injuries.

Accidents can happen throughout the season, because of everything from the bad weather to a cooking faux pas to holiday crowds. This season, the American Academy of Orthopaedic Surgeons offers tips to avoid bone and joint injuries:

Deck the halls

Lifting injuries can happen quickly and painfully to anyone, at any age. Lifting properly can save you a world of hurt. Bend at the knees to use the large leg and glute muscles instead of your back to pick up heavy items. Don’t twist or rotate while lifting, especially when shoveling snow. Bend your knees and pivot your whole body, not just the torso. Shoveling is a good activity for kids and teens, but teach them correct shoveling techniques. Remind them, too, that shovels are tools, not toys. Many head injuries to kids are caused by inappropriate shovel use.

Rockin’ around the clock

Holiday decorations appeal to people of all ages but also pose the risk for injury if you aren’t careful. Climbing a ladder indoors or outdoors to decorate when no one else is around is a major risk for injury from falls. Always work with a partner, and remember to use ladders on firm, level surfaces. You can let children help decorate, under supervision, giving them age-appropriate tasks.

Babes in toy land

Children love toys they can ride. Did you know, however, that nonmotorized scooters account for 21% of all toy-related emergency department visits? In 2021, 41,700 injuries were reported by emergency room departments. The key to preventing injuries? Give age-appropriate toys and teach children important safety tips when trying new toys, such as scooters.

A winter wonderland

Not everyone has to be concerned about walking on ice, but if you live in a wintry climate, icy surfaces can lurk anywhere. In fact, approximately 1 million Americans are injured annually because of falling on ice and snow. Make sure you and your children wear shoes that have good traction to prevent slipping and falling. You can even purchase slip-on shoe gear that adds traction when walking on ice. And remember, if you hop on the party train, imbibe responsibly so you’re always surefooted, regardless of surface conditions.

Let it snow

Ski and snowboarding season is approaching, and anterior cruciate ligament tears in the knee joint are common. Research has shown that keeping your arms forward and hips over the knees can reduce the risk of injury. Many injuries occur from falling backward, twisting the knee. Adjust your bindings to meet your ability. When you’re careful, outdoor winter sports can be one of the safest and most enjoyable ways to socially distance and work out at the same time.

The fire is so delightful

Prevent burns by knowing the risks. Lighted candles and fireplaces are obvious sources of burn potential, but the kitchen is another hot spot when it comes to burns. Practice good safety habits and keep children away from open fires, candles, appliances and cooking utensils that are hot. Know what to do in case of a burn. Treat minor burns with cool running water, a sterile bandage and over-the-counter pain reliever. More serious burns require immediate medical attention.

To help you and your family enjoy this festive season worry-free, visit OrthoInfo.org for in-depth holiday safety measures.

5 better holiday baking tips to elevate your celebrations

2022-12-02T08:01:00

(BPT) – Baking during the holidays is a great way to bring family and friends together. Whether you’re trying out a new recipe or following old traditions, there are plenty of ways to elevate your holiday baking! Registered Dietitian and Nutritionist Dalina Soto shares some better baking tips below that every host needs to know this holiday season.

1. Keep Your Workspace Clean and Organized

Before you begin baking your holiday creations, make sure to clean your workspace to avoid any cross-contamination. Having an organized workspace can also shorten your time spent baking, from prep to plating. By arranging all ingredients before you begin baking, everything will be within reach right when you need it.

2. Test Baking Soda and Baking Powder

Believe it or not, your baking powder and baking soda do have a shelf life! If they are expired, you won’t get the typical rise and lift on your baked goods. To test for freshness, pour a teaspoon of baking powder into a cup of hot water and a quarter teaspoon of baking soda into two tablespoons of vinegar. If both mixtures bubble, let the baking commence!

3. Reduce Oil Measurements

Oil is a common ingredient in baking as it ensures your baked goods will be moist, soft and delicious! However, there are ways to reduce the fat content without taking away from the integrity of your recipe. Soto recommends using plain yogurt or fruit purees such as applesauce and mashed bananas as a replacement. Making this simple change can lessen the amount of saturated fat in your recipes and will be just as delicious!

4. Practice a Healthy Balance

During the holidays, there’s an abundance of sweet treats and delicious foods. While you should enjoy these foods with friends and family, try to maintain balance by drinking enough water to stay hydrated and incorporate fiber and nutrition with fruits, vegetables and healthy fats.

5. Use High-Quality Ingredients

To elevate your holiday baking creations even more, Soto stresses the importance of using high-quality ingredients, like Eggland’s Best eggs, to ensure your meals are delicious and nutritious. Eggland’s Best eggs contain 25% less saturated fat compared to ordinary eggs, which helps to support a balanced diet even during the holidays. They also contain more than double the Vitamin B12 compared to ordinary eggs, to keep you feeling energized and satisfied throughout all your seasonal activities.

Try these Festive Vanilla Holiday Cupcakes if you’re looking for a new recipe that will wow your guests during your holiday festivities. They’re easy, delicious and even double as holiday décor!

Festive Vanilla Holiday Cupcakes
Prep time: 10 minutes
Cook time: 20 minutes
Yields: 24 cupcakes

Ingredients

Cupcakes:

· 3 Eggland’s Best eggs, large

· 1 1/2 cups all-purpose flour

· 1 teaspoon baking powder

· 1 1/2 cups sugar

· 1 stick unsalted butter (room temperature)

· 3/4 cup milk

· 1 1/2 teaspoons pure vanilla extract

Frosting:

· 1 cup unsalted butter, softened

· 16 ounces regular cream cheese, softened

· 2 teaspoons vanilla extract

· 8 cups powdered sugar

· 1/2 teaspoon salt

For Decorating:

  • Snow globe:
    • Ornament
    • Gingerbread Cookie
  • Snowman:
    • Marshmallows
    • Pretzel Sticks
    • Peanut Butter Cup
  • Trees:
    • Pretzel Sticks
    • Green Frosting

PREPARATION
Cupcakes:

1. Preheat oven to 350°F.
2. Sift flour and baking powder and set aside. In a mixer, cream butter and sugar until light and fluffy while adding eggs one at a time, add in vanilla extract.
3. Gradually add flour mixture and milk to mixer until well incorporated.
4. Divide batter evenly on cupcake liners. Bake for about 18-20 minutes. Let cool on a wire rack before decorating.

Decorating/Frosting:
1. In a bowl, add the butter and cream cheese and whisk well until lump-free. Add the vanilla extract and salt and mix some more. Mix in the powdered sugar until combined.
2. Using a regular icing tip, pipe the frosting onto the cupcake.
3. Decorate with optional toppings as pictured in image.

Recipe Tips:
For the frosting, make sure to remove the butter and cream cheese from the fridge so that it will be easier to mix and make the frosting.

If making the snowman, use icing to hold the pieces together.

You can find more holiday recipes to take your celebrations to the next level by visiting EgglandsBest.com.

How People Living with Classic Congenital Adrenal Hyperplasia (CAH) Can Help Advance Research

2022-12-01T07:01:00

(BPT) – Patient registries are a way for researchers to collect data outside of clinical trials to increase understanding of the natural history of a particular condition. The data are used to study outcomes, monitor best practices within the framework of the standard of care, and accelerate the development of new treatment options. Classic CAH is a rare, genetic condition with multiple hormone abnormalities and complex symptoms affecting many organs, including the body’s ability to maintain homeostasis or balance in response to stress. The real-world data found in patient registries are especially important for rare conditions such as classic CAH where such data is limited. The CAHtalog™ (Congenital Adrenal Hyperplasia: Patient and Clinical Outcomes in Real-World Practice Settings) Registry aims to support patient-centered research, by creating a database for use in research to enhance the scientific community’s foundational knowledge of classic CAH, and ultimately help patients who live with the condition.

Advancing Research in Classic CAH

To develop new treatments for classic CAH, researchers and scientists require an in-depth understanding of how the condition and the current treatment options impact patients and caregivers. Due to the complexity of treating classic CAH and because the condition is rare, adequate long-term data are lacking. Therefore, more complete and central data collection of standardized, research-ready information is needed to better understand the disorder and how to best manage it.

Standard registries require someone from a clinician’s office to enter patient data of interest from charts. In contrast, the CAHtalog™ Registry is a direct-to-patient registry that uses technology that enables data to be captured by extracting the relevant data from a patient’s charts. With the real-world data provided through patient medical records, researchers gain a better understanding of the condition as patients receive routine care from their doctors.

Researchers can use this data to understand how classic CAH progresses, how it is typically monitored and managed, and how current treatments can impact clinical outcomes of interest in these patients. All this information provides important context on the natural history of the condition that is invaluable for developing new treatment options, especially for a rare disease like classic CAH.

“Registries like this one are of crucial importance to researchers working to advance the treatment of conditions such as CAH,” said Karen Lin Su, M.D., Medical Director at the CARES Foundation. “The data provide the most realistic window into the needs that we are looking to solve. Participation helps to further research for the CAH community, contributing to advancements in care that can impact generations.”

Coming Together for a Cause

CARES Foundation, Neurocrine Biosciences, Inc, and PicnicHealth are committed to furthering the understanding of classic CAH and fostering the development of new treatment options, an endeavor that requires a greater understanding of both the disease and its impact on the lives of patients and caregivers.

CARES recognized the need for data compilation and saw an effective pathway to establish a patient-centered registry through collaboration with Neurocrine Biosciences and PicnicHealth.

  • CARES, a non-profit organization solely dedicated to those impacted by CAH, supports CAH research and has helped plan and implement the registry.
  • Neurocrine Biosciences, a biopharmaceutical company, is sponsoring the registry to support the scientific and medical communities in increasing their understanding of CAH.
  • PicnicHealth, an innovative electronic health records company, uses its research platform to collect and encrypt patients’ medical records when they enroll, structure the anonymized data for use by researchers, and provide patients with access to their consolidated records.

Most importantly, patient participation in research initiatives like this one may play an essential role in advancing CAH treatment and care.

Benefits to You

Not only may the CAH community benefit from your participation, but you will have ready access to your digital medical records following enrollment. Specifically, PicnicHealth will digitize and encrypt all your medical records and arrange them into a timeline, which you’ll be able to access and share with your medical providers to help inform future care. Additionally, you can earn up to $150 per year with the completion of optional surveys.

How Do I Sign Up?

Adults and children living with classic CAH who have received care in the U.S. can visit picnichealth.com/CAH to enroll in just a few minutes. Contributing to the registry is simple and does not involve medical tests, study medications, or in-person visits.

With your consent, PicnicHealth will gather and de-identify your medical history and compile it with information from other participants to create a valuable resource for researchers. Your personal information will never be shared with researchers—only aggregated anonymized data is shared—and PicnicHealth uses advanced technology and processes to keep your information safe.

“Signing up for the CAHtalog Registry was very simple, and I am proud I was one of the first to join,” said Lesley Holroyd. “It is so fulfilling to know that I am contributing to research that could one day benefit me and other people living with CAH.”

To learn more about the CAHtalog™ Registry and to sign up, visit picnichealth.com/CAH.

©2022 Neurocrine Biosciences, Inc. All Rights Reserved. CAP-PIP-US-0006 12/2022