Scarlett Johansson, Taylor Swift and Sabrina Carpenter Top McAfee’s 2024 Celebrity Hacker Hotlist for AI-Driven Online Scams

2024-10-23T10:43:00

(BPT) – The line between reality and deception has blurred in our digital world, with cybercriminals leveraging cutting-edge AI technologies to exploit our trust in celebrities. McAfee’s 2024 Celebrity Hacker Hotlist sheds light on a growing threat — online scams using the identities of our favorite stars to trick and steal from us.

Actors, Singers, Online Influencers Lead the Celebrity Hacker Hotlist

Actress Scarlett Johansson leads the list of most exploited celebrity names. Renowned for her roles in Marvel’s Black Widow and Lost in Translation, this time, Johansson isn’t making headlines for a movie — she’s ranked as the U.S. celebrity whose name is most frequently used in online scams.

Johansson’s likeness has been used in AI-generated deepfakes, from unauthorized ads to fake endorsements, creating a major risk for unsuspecting fans.

Celebrities like Kylie Jenner, Taylor Swift, and Tom Hanks also find themselves in the top 10, with hackers exploiting their images, voices, and reputations to deceive internet users. Whether it’s for fake giveaways, cryptocurrency scams, or disinformation campaigns, these stars are unwilling participants in the cybercrime ecosystem.

McAfee’s 2024 Hacker Celebrity Hot List: Top Ten

McAfee’s Threats Research Team compiled the Celebrity Hacker Hotlist by identifying the celebrities — including social media influencers — whose names and likenesses are most often exploited in malicious deepfake scams and unsafe search results that can lead consumers to unknowingly install malware or engage with scams that jeopardize their data, privacy, and identity.

The top ten list includes a combination of longtime talent and more recent names from various fields, showcasing their potential influence on consumers of all generations:

1. Scarlett Johansson: Actress and singer whose name and likeness has been used without permission for advertisements and endorsements, outspoken advocate against non-consensual AI-generated content

2. Kylie Jenner: Reality star and influencer whose name and likeness has been used without permission for social media giveaway scams and fake Kylie Cosmetics products and websites

3. Taylor Swift: Singer whose name and likeness has been used without permission for celebrity endorsement, ticket scams, and product giveaway scams, as well as for disinformation (political endorsement)

4. Anya Taylor-Joy: Actress whose name and social account/likeness has been used without permission for a giveaway scam, and to spread misinformation about her streaming series

5. Tom Hanks: Actor whose name and likeness has been used without permission to promote “miracle cures and wonder drugs”

6. Sabrina Carpenter: Singer whose name and likeness has been used without permission for fake ticketing scams and to advertise an app for creating sexually explicit images

7. Sydney Sweeney: Actress whose name and likeness has been used without permission for crypto scams

8. Blake Lively: Actress whose likeness was used without permission in a weight loss gummy scam

9. Johnny Depp: Actor whose likeness has been used without permission in giveaway, crypto, and fundraising scams

10. Addison Rae: Singer and actress whose likeness has been used without permission for fake endorsements, giveaways, and crypto scams

The Rise of AI Deepfakes in Cybercrime

AI is revolutionizing industries, but it’s also given cybercriminals a powerful new tool: the deepfake. These highly realistic video or audio clips can mimic the likeness of a person, making it nearly impossible to tell whether the content is real or fake. Deepfakes of celebrities are being used to promote fraudulent products, steal personal information, and trick people into downloading malware. Imagine watching a video of your favorite star endorsing a new product, only to find out it wasn’t them at all. This is a reality many fans face as scammers get better at crafting fake content. Some of these AI-generated videos are so convincing that even the savviest of internet users can fall for them.

The Impact on Fans and Celebrities

While these scams primarily aim to steal money or personal data from consumers, the effects are far-reaching. For fans, the consequences can be devastating, with financial losses ranging from a few hundred dollars to over half a million. In addition to the financial risks, victims often feel violated after engaging with fraudulent content. For celebrities, these scams can have a serious impact on their public image and brand. Many stars, including Johansson, have taken a firm stand against the unauthorized use of their images in AI-generated content. As Johansson has publicly expressed, it’s not just about personal privacy but about the broader implications of AI and the need for accountability in the tech world.

Staying Safe in the Age of AI Scams

As AI becomes more accessible, these scams are only expected to rise. To combat this growing issue, McAfee has introduced the McAfee Deepfake Detector, the first AI-powered tool of its kind. Trained on hundreds of thousands of samples, this tool can alert users within seconds if a video or audio clip contains AI-altered content. But technology alone can’t keep you safe. Here are some practical tips to protect yourself from AI-generated scams:

1. Scrutinize Social Media: Social media platforms are hotbeds for disinformation and scams. Be skeptical of shocking or too-good-to-be-true claims, especially if they involve celebrities.

2. Validate Sources: Always verify claims by cross-checking with reliable news outlets and websites. Don’t trust content without fact-checking it first.

3. Detect Deepfakes: Look closely at the content for unnatural features — odd blinking patterns, mismatched audio, or distorted body parts can be signs of a deepfake.

4. Engage with Caution: Avoid commenting on, sharing, or even clicking on unverified social media posts. Engaging with them can increase your exposure to scams.

5. Be Mindful of Your Information: Never give out your personal details to unverified sources or websites. Phishing scams often request sensitive information under the guise of a celebrity endorsement or giveaway.

In 2024, staying safe online means being aware of the rapidly evolving landscape of AI and cybercrime. Scammers are getting better at mimicking trusted names to deceive fans. With AI-powered tools like deepfake detectors and informed vigilance, we can reduce the risk of falling victim to these digital traps. Stay informed, stay cautious, and always think twice before clicking on a too-good-to-be-true celebrity endorsement. For more information about McAfee’s 2024 Celebrity Hacker Hotlist and ways to protect yourself, visit https://www.mcafee.ai.

Methodology

The study was conducted by McAfee® threat intelligence researchers to determine the number of risky sites and amount of misleading content generated by searching a celebrity name with commonly used terms. A risk score was calculated for each celebrity. McAfee’s WebAdvisor browser extension leverages McAfee’s technology to protect users from malicious websites and, when turned on, rates nearly every internet website it finds, using red, yellow and green icons to indicate the website’s risk level and blocking access to or warning a user if they click on a malicious or risky URL link. Ratings are created by using patented advanced technology to conduct automated website tests and works with Chrome, Edge, Safari, and Firefox.

Clinical trials are needed to develop new medicines for children and teens living with seizures

2024-10-23T05:01:00

(BPT) – Epilepsy at any age can be challenging to navigate, even more so when a patient is a young child or teen. Some medications can help manage seizures for many patients. However, one-third of children with newly diagnosed epilepsy fail the first antiseizure medication they were prescribed. These patients may experience seizures even when taking their medications as prescribed.

The impact of seizures on children and teens

Seizures may be a frightening experience for a child. When their symptoms can’t be controlled by medication, pediatric patients with seizures can develop lifelong challenges.

“I’ve witnessed firsthand the negative impact seizures can have on the quality of life of children and teens,” said Sunita Misra, M.D., Ph.D., and chief medical officer at SK Life Science, a company that develops treatments for seizure disorders.

During her career, Dr. Misra has cared for drug-resistant pediatric epilepsy patients. “When traditional medications are unsuccessful in managing seizures, young patients and their families must contend with health challenges that affect a child’s ability to thrive academically, socially and emotionally,” explained Dr. Misra.

For young children, seizures may disrupt a child’s brain development, which can lead to a serious impact on their lives. According to the Epilepsy Foundation, seizures can stymie a child’s academic achievements and lead to emotional and behavioral issues.

Also, because seizures aren’t predictable, a child may experience anxiety and distress, preventing them from fully engaging in school and social activities. The unpredictability can also be challenging for caregivers to maintain jobs, impacting the financial well-being of families, which can cause more anxiety for a child and their loved ones.

Teens living with seizure disorders can feel left out when it comes to adolescent milestones. For example, getting a driver’s license is a rite of passage, representing independence, maturity and freedom. Adolescents contending with uncontrolled seizures generally cannot obtain their license, which can make them feel left out, isolated from their peers and dependent on others.

How clinical trials may help

Researchers are constantly conducting studies to try to develop new or improved treatments that can address the unmet needs of pediatric patients living with seizures.

For example, SK Life Science is currently enrolling patients in three clinical trials investigating a potential treatment for teens with primary generalized tonic-clonic (PGTC) seizures and young children with partial-(focal) onset seizures.

The PGTC clinical trial is a global Phase 3 study activated in the U.S. as well as 11 other countries. This trial recruits pediatric patients between the ages of 12 and 17 who continue to have PGTC seizures despite traditional medications.

The remaining two trials focus on pediatric partial-onset seizures. The Phase 1 trial is an open-label pharmacokinetics study that is currently recruiting patients between the ages of 2 to 5 in the U.S., South Korea, Hungary and Spain. Meanwhile, the Phase 3 trial is an open-label safety study also recruiting in the U.S., South Korea, Hungary and Spain, as well as Australia and Poland.

“At SK Life Science, we are currently working to provide alternatives for younger patients,” said Dr. Misra. “If you are a parent of an adolescent diagnosed with PGTC or of a toddler or young child with partial-onset seizures, you may want to speak with your doctor to see if your child can participate in these trials.” To learn more, visit www.sklifescienceinc.com.

Listening to your ill-tuition: 5 health symptoms women shouldn’t ignore, according to a doctor

2024-10-23T08:47:00

(BPT) – When it comes to health, women’s intuition isn’t just a hunch — it’s practically a superpower. According to recent research from MD Live by Evernorth, more than two-thirds of women say they have a sixth sense when it comes to their health. This “ill-tuition” is the innate ability to sense when something may be wrong with your body — and 81% of women trust it. Yet, despite this trust, most women hold off on seeking care until their symptoms interfere with their daily lives, instead of being proactive at the first sign that something is off. This delay can lead to unnecessary worsening of symptoms.

“Many common symptoms can be early warning signs of an underlying health condition. Ignoring your body’s signals can prevent timely diagnosis and treatment,” explains Dr. Vontrelle Roundtree, Associate Chief Medical Officer for MD Live by Evernorth. “Trusting your intuition and acting on it early can make all the difference in managing your health.”

Roundtree discusses five common symptoms that women tend to dismiss, according to the research, what conditions they may point to and why it’s important to seek timely medical care when your intuition sounds the alarm.

1. Itching that doesn’t go away

Itching may seem like just a minor annoyance, but if it’s persistent, it may point to various underlying health issues. Itching could signal hormonal fluctuations, skin conditions like eczema, or even liver or kidney problems. Itching without a visible rash can be a sign of broader health issues because it often indicates that the root cause lies beneath the surface of the skin rather than on it. For pregnant women, persistent itching may be a symptom of cholestasis, a liver condition that requires immediate medical attention.

2. Persistent bloating

Bloating is normal after eating a big meal or when experiencing the occasional digestive issue. But, when bloating occurs frequently, it could be a sign of gastrointestinal disorders such as irritable bowel syndrome (IBS). Bloating that gets worse over time could be a symptom of stomach inflammation or certain cancers. In fact, bloating is one of the more common early warning signs of ovarian cancer, caused by the buildup of fluids in the stomach.

3. Fatigue

Feeling tired is often unavoidable, especially for women balancing work, family and other responsibilities. However, when that tiredness becomes persistent and starts affecting your quality of life, it might point to fatigue, a debilitating condition that significantly impacts your daily life. Fatigue is often a symptom of an underlying chronic condition, such as diabetes, heart disease, depression or thyroid disorders. If a good night’s sleep or taking time to rest doesn’t make a noticeable difference in your energy levels, it’s time to consult a doctor to explore the potential causes.

4. Unexplained weight fluctuations

It’s not uncommon for a woman’s weight to naturally fluctuate, especially during their menstrual cycle. However, unexpected weight gain or loss can indicate hormonal imbalances, thyroid problems or metabolic disorders. When weight changes are sudden and not resulting from changes in your diet or exercise routine, it’s important to rule out any larger health issues, like cancer or chronic illness.

5. Chronic anxiety

Although anxiety is commonly associated with mental health disorders, its presence can also point to underlying physical health issues. If you’re feeling anxious without a clear reason, or your anxiety is constant, it’s important to explore whether a physical condition could be contributing. Anxiety is often linked to cardiovascular diseases and endocrine problems, like hyperthyroidism. Regardless of whether it stems from something physical or mental, early intervention is critical.

Your first call: A doctor

These symptoms may not always seem urgent, but it’s important not to ignore them, especially if they become persistent or chronic. “If you feel something is off with your health, trust your intuition and seek medical advice promptly,” Roundtree advises. “Doctors are here to help you get to the bottom of your symptoms — no matter how big or small they may seem.” When your instincts tell you something is off, you can schedule a virtual visit with an MD Live board-certified doctor to get an expert medical opinion without unnecessary delays.

Remember, it’s always better to address a potential health concern when it’s small rather than wait until it becomes more serious. The next time your ill-tuition kicks in, trust it.

New JURA J8 twin makes coffee dreams come true with dual grinders, sweet foam function and more

2024-10-23T06:05:00

(BPT) – JURA, the global innovation leader in automatic coffee machines, introduces the JURA J8 twin, packed with technical innovations for an unparalleled coffee experience. With its two high-performance grinders, it can prepare 31 delicious specialties at the touch of the display. It also features JURA’s exclusive Sweet Foam function that flavors milk foam with a hint of syrup.

Dual Conical Grinders for Coffee Customization

The J8 twin can process two different coffee bean varieties thanks to the double bean hopper and two high-performance P.A.G.3+ conical grinders. It can prepare espresso in the morning and decaf at night or customize a personal blend of two different single-origin beans. The machine actively monitors grind consistency, which controls the aroma in the cup. Between preparations, the grinders remain in rest mode, extending their service life while ensuring consistently delectable flavor.

Sweet Foam Function

The J8 twin takes indulgence to a whole new level with the Sweet Foam function. Simply fill the included attachment with syrup, secure to the frother, and the system infuses the subtly sweet flavor evenly throughout the milk foam. Customize flavor and intensity, using your favorite syrup — amaretto, hazelnut, butterscotch, vanilla, gingerbread, tangerine, lavender, cherry — the flavor possibilities are endless!

Coffee Eye

An exclusive JURA innovation, the Coffee Eye is an intelligent cup sensor to ensure the cups are always placed under the correct spout for the chosen specialty.

Easy to Use and Tech-Ready

The Panorama Coffee Panel is the control center for the J8 twin. Operation is intuitive and includes an Easy Mode with slider controls. The machine features integrated Wi-Fi Connect and is compatible with J.O.E. (JURA Operating Experience), an exclusive free mobile app. J.O.E. allows users to personalize their favorite beverages, initiate brewing, view maintenance instructions and videos, and more.

JURA offers a full range of Accessory and Care Products. The best-selling Cool Control, a countertop milk cooler that connects to a JURA machine, keeps milk at the optimum temperature for preparing coffee specialties.

For more information, visit jura.com.

One Patient’s Journey with Relapsed Diffuse Large B-Cell Lymphoma and What He Wants You to Know

2024-10-22T11:01:00

(BPT) – The word “cancer” can immediately turn someone’s world upside down. The six-letter word has the power to bring a flood of emotions with it – fear, anxiety and confusion. But learning about common symptoms to watch for and the impact of different types of cancer can help bring understanding and preparedness. That’s why Michael, an Ohio native living with an aggressive blood cancer known as diffuse large B-cell lymphoma (DLBCL), wants to share his story.

What to Know About This Type of Lymphoma

DLBCL is a type of aggressive, fast-growing non-Hodgkin’s lymphoma (NHL), a cancer that develops in the lymphatic system and affects B cells, a type of white blood cell.[1],[2] DLBCL is the most common subtype of NHL, with more than 18,000 people being diagnosed with this type of cancer each year in the U.S.[3] While DLBCL can occur at various ages, it is most frequently diagnosed among people aged 65-74.[4] The symptoms associated with DLBCL often resemble those of more common conditions, such as: enlarged lymph nodes, painless swelling in the neck, underarms or groin; unexplained weight loss; fatigue and/or lack of energy; and chills, fever and/or excessive sweating, often at night.[5],[6]

Despite being labeled as an “aggressive” cancer, DLBCL is curable for some.[7] However, about 30-40% of people with DLBCL develop relapsed or refractory (R/R) disease,[8] which means their cancer returns after initial treatments and/or their cancer stops responding to treatment.

People with R/R DLBCL experience significant treatment challenges, with outcomes worsening with each line of treatment.[9] The heartbreaking reality is that 1 in 3 patients will not survive 5 years after receiving a DLBCL diagnosis.[10]

How Michael Still Lives Life on His Own Terms

Michael, a 66-year-old, received the devastating diagnosis of DLBCL in 2016. He had coached softball and football for 32 years and loved being involved in his community, which had to be put on pause. Living with DLBCL can be difficult, especially for those who enjoy outdoor activities, as the disease can cause fatigue and/or lack of energy.

Adjusting to life with DLBCL can be hard, but thinking about how this would affect his children was even harder. “Not knowing if you have a tomorrow is a very unpleasant thing, and not knowing if you’ll be there for your family is even worse,” Michael shared. But he was able to push forward and finish treatment, driven by the desire to be there for his family and community. For five years, Michael was in remission.

In 2021, Michael’s cancer returned. He had gone through various treatments for his initial diagnosis already, including chemotherapy and radiation. But this time was different, and Michael would try several additional treatment options such as chemoimmunotherapy, CAR T therapy and a clinical trial.

Michael was also remarried now and had Kimberly in his life. Michael and Kimberly connected in 2018 after Kimberly came to watch her granddaughter’s soccer game that Michael was coaching. They fell in love and got married 6 months later. Kimberly became Michael’s Care Partner – a term used to refer to a “caregiver” who provides someone with physical and emotional support – and has been by his side for all aspects of his cancer treatment.

“Kimberly is a true blessing,” Michael said. “She is an absolute rock.” Kimberly acknowledged that Michael’s life with DLBCL had been challenging, but that they had many reasons to maintain hope. Her advice to others is to “think of treatments like water stations in a marathon: something may not be working, or may not work long term, but there can be something else ahead. Your health is not a sprint. It’s a marathon.” As it turned out, Michael was arriving at his next water station. He and his physician decided to try a bispecific antibody treatment known as EPKINLY® (epcoritamab-bysp) following his relapse.

Michael began treatment with EPKINLY in May 2023, and has been on it since. EPKINLY is the first and only subcutaneous bispecific antibody approved by the U.S. Food and Drug Administration to treat adults with certain types of DLBCL and high-grade B-cell lymphoma that has come back or that did not respond to previous treatment after receiving two or more treatments.[11] Treatment options are expanding, and EPKINLY offers a subcutaneous (just under the skin) injection option for patients living with this type of cancer.

Michael, along with his clinicians, noticed that he was responding to treatment well and said he is now in “a good place.” He enjoys every day he is able to spend time with Kimberly, his six daughters, and 10 grandchildren. Although Michael is still living with DLBCL, he shared that EPKINLY is helping to keep it under control – his bloodwork is normal, and his disease is stable. Michael’s physician also advised him to look out for certain signs and symptoms of infection during his treatment.

Michael’s journey with relapsed DLBCL has been ongoing for almost a decade, but with his support system and continued treatment with EPKINLY, Michael’s marathon continues.

What is EPKINLY?
EPKINLY is a prescription medicine used to treat adults with certain types of diffuse large B-cell lymphoma (DLBCL) and high-grade B-cell lymphoma that has come back or that did not respond to previous treatment after receiving 2 or more treatments. EPKINLY is approved based on patient response data. A study is ongoing to confirm the clinical benefit of EPKINLY. It is not known if EPKINLY is safe and effective in children.

IMPORTANT SAFETY INFORMATION

Important Warnings—EPKINLY can cause serious side effects, including:

  • Cytokine release syndrome (CRS), which is common during treatment with EPKINLY and can be serious or life-threatening. To help reduce your risk of CRS, you will receive EPKINLY on a step-up dosing schedule (when you receive 2 smaller step-up doses of EPKINLY before your first full dose during your first cycle of treatment), and you may also receive other medicines before and for 3 days after receiving EPKINLY. Your first full dose of EPKINLY will be given on day 15 of your first cycle of treatment and you should be hospitalized for 24 hours after due to the risk of CRS and neurologic problems. If your dose of EPKINLY is delayed for any reason, you may need to repeat the step-up dosing schedule.
  • Neurologic problems that can be life-threatening and lead to death. Neurologic problems may happen days or weeks after you receive EPKINLY.

Tell your healthcare provider or get medical help right away if you develop a fever of 100.4°F (38°C) or higher; dizziness or lightheadedness; trouble breathing; chills; fast heartbeat; feeling anxious; headache; confusion; shaking (tremors); problems with balance and movement, such as trouble walking; trouble speaking or writing; confusion and disorientation; drowsiness, tiredness or lack of energy; muscle weakness; seizures; or memory loss. These may be symptoms of CRS or neurologic problems. If you have any symptoms that impair consciousness, do not drive or use heavy machinery or do other dangerous activities until your symptoms go away.

EPKINLY can cause other serious side effects, including:

  • Infections that may lead to death. Your healthcare provider will check you for signs and symptoms of infection before and during treatment and treat you as needed if you develop an infection. You should receive medicines from your healthcare provider before you start treatment to help prevent infection. Tell your healthcare provider right away if you develop any symptoms of infection during treatment, including fever of 100.4°F (38°C) or higher, cough, chest pain, tiredness, shortness of breath, painful rash, sore throat, pain during urination, or feeling weak or generally unwell.
  • Low blood cell counts, which can be serious or severe. Your healthcare provider will check your blood cell counts during treatment. EPKINLY may cause low blood cell counts, including low white blood cells (neutropenia), which can increase your risk for infection; low red blood cells (anemia), which can cause tiredness and shortness of breath; and low platelets (thrombocytopenia), which can cause bruising or bleeding problems.

Your healthcare provider will monitor you for symptoms of CRS, neurologic problems, infections, and low blood cell counts during treatment with EPKINLY. Your healthcare provider may temporarily stop or completely stop treatment with EPKINLY if you develop certain side effects.

Before you receive EPKINLY, tell your healthcare provider about all your medical conditions, including if you have an infection, are pregnant or plan to become pregnant, or are breastfeeding or plan to breastfeed. If you receive EPKINLY while pregnant, it may harm your unborn baby. If you are a female who can become pregnant, your healthcare provider should do a pregnancy test before you start treatment with EPKINLY and you should use effective birth control (contraception) during treatment and for 4 months after your last dose of EPKINLY. Tell your healthcare provider if you become pregnant or think that you may be pregnant during treatment with EPKINLY. Do not breastfeed during treatment with EPKINLY and for 4 months after your last dose of EPKINLY.

The most common side effects of EPKINLY include CRS, tiredness, muscle and bone pain, injection site reactions, fever, stomach-area (abdominal) pain, nausea, and diarrhea. The most common severe abnormal laboratory test results include decreased white blood cells, decreased red blood cells, and decreased platelets.

These are not all of the possible side effects of EPKINLY. Call your doctor for medical advice about side effects. You are encouraged to report side effects to the FDA at (800) FDA-1088 or www.fda.gov/medwatch or to Genmab US, Inc. at 1-855-4GENMAB (1-855-443-6622).

Please see Medication Guide, including Important Warnings.

Please click to see Important Facts about EPKINLY, including Important Warnings for cytokine release syndrome and neurologic problems.

If you or someone you know has R/R DLBCL, speak with your doctor about potential therapies, including EPKINLY.

For more information, please visit epkinly.com.

COM-US-EPK-0001012


[1] Lymphoma Coalition. https://lymphomacoalition.org/what-is-lymphoma/. Accessed April 2024.

[2] Sehn LH, Salles G. N Engl J Med. 2021;384:842-858.

[3] Lymphoma Research Foundation. https://lymphoma.org/understanding-lymphoma/aboutlymphoma/nhl/dlbcl/. Accessed April 2024.

[4] National Cancer Institute SEER. https://seer.cancer.gov/statfacts/html/dlbcl.html. Accessed April 2024.

[5] About Lymphoma and Lymphoma Subtypes. Lymphoma Research Foundation. https://lymphoma.org/understanding-lymphoma/aboutlymphoma/. Accessed February 2024.

[6] Signs & Symptoms. Lymphoma Coalition. https://lymphomacoalition.org/signs-symptoms/. Accessed February 2024.

[7] Lymphoma Research Foundation. https://lymphoma.org/understanding-lymphoma/aboutlymphoma/nhl/dlbcl/. Accessed April 2024.

[8] Cassandra Duarte et al., Management Considerations for Patients With Primary Refractory and Early Relapsed Diffuse Large B-Cell Lymphoma. Am Soc Clin Oncol Educ Book 43, e390802(2023).

[9] Ekberg, S., Crowther, M., Harrysson, S. et al. Patient trajectories after diagnosis of diffuse large B-cell lymphoma—a multistate modelling approach to estimate the chance of lasting remission. Br J Cancer 127, 1642–1649 (2022). https://doi.org/10.1038/s41416-022-01931-2

[10] National Cancer Institute SEER. https://seer.cancer.gov/statfacts/html/dlbcl.html. Accessed May 2024.

[11] EPKINLY [package insert].

Chronic stomach pain leads to a rare disease diagnosis

2024-10-22T08:21:00

(BPT) – Stomach pain, nausea and brain fog can be uncomfortable to experience. Imagine living with these symptoms every day without knowing their cause or being able to manage and rid yourself of them.

This was Aaron’s experience; he spent decades living with debilitating, daily pain — sometimes so severe he needed to be hospitalized — before finally receiving an accurate medical diagnosis. Now, Aaron knows that he is living with familial chylomicronemia syndrome, or FCS, which is a rare, genetic condition that can lead to potentially life-threatening acute pancreatitis (painful inflammation of the pancreas.)

Journey to diagnosis

“As a young kid, I would battle stomach pain so intense that it would cause me to miss school for weeks at a time,” Aaron shares. He saw doctor after doctor and was repeatedly told to “eat better and exercise more.”

“I tried five different types of diets and kept food journals to show my doctors I was following their advice. But I still found no relief — I’d have excruciating, crippling pain for four or five straight days over and over again with no relief.” This lasted for decades.

Aaron finally received an answer at age 36 when he was diagnosed with FCS.

Understanding FCS

During a doctor’s appointment with a specialist, Aaron was told his triglyceride levels — a type of fat that the body uses as a source of energy — had been over 1,200 mg/dL since his childhood. While healthy levels for adults are typically below 150 mg/dL, levels higher than 500 mg/dL are a sign of a common condition called severe hypertriglyceridemia (sHTG), which can lead to health complications such as damage to the pancreas.

Triglyceride levels of more than 880 mg/dL — like Aaron experiences — may be an indication of FCS, a rare, genetic form of sHTG. In addition to the risk of potentially life-threatening acute pancreatitis, people living with FCS also experience chronic health issues such as fatigue, brain fog and severe, recurrent abdominal pain.

After 36 years of struggle, Aaron’s diagnosis helped him make sense of his lifelong symptoms. “The first thing I felt upon receiving my diagnosis was validation that my pain had a real, medical cause.”

Living with FCS

FCS can be associated with physical, mental, emotional and financial burdens, which can cause people to feel overwhelmed and have a significant impact on their quality of life. “On my best days, I feel like I have the flu — body aches, nausea, diarrhea, headache and a foggy brain. On my worst days, I’m hospitalized for two to three weeks with pancreatitis,” explains Aaron.

To help manage symptoms, people living with FCS must adhere to an extremely strict diet. This involves limiting daily fat intake to less than 15 to 20 grams — that’s roughly equal to just one tablespoon of olive oil per day. “I’ve had to learn to adjust my social life so that events don’t always revolve around food, and the unfortunate reality is that I just may not be able to participate,” says Aaron.

Raising awareness and aiding in earlier diagnosis of this rare disease is important to Aaron. His hope for the future is that people living with FCS don’t feel the loneliness he lived with for too long. “I’ve made a conscious decision to not let having FCS control my outlook on life. I choose to be happy, and my hope in sharing my story is to normalize FCS so that the next person may not have to wait 36 years to find a diagnosis and won’t feel so alone.”

The article shares the story of one person and may not be representative of all patient journeys. If you have questions about your health, speak with your doctor. To learn more about FCS and helpful resources, including taking a signs and symptoms quiz that can provide useful information to guide your discussion with a doctor, visit www.KnowYourTGs.com.

References:
  1. Moulin P, Dufour R, Averna M, et al. Identification and diagnosis of patients with familial chylomicronaemia syndrome (FCS): Expert panel recommendations and proposal of an “FCS score”. Atherosclerosis. 2018;275:265-272.
  2. Chyzhyk V, Brown AS. Familial chylomicronemia syndrome: A rare but devastating autosomal recessive disorder characterized by refractory hypertriglyceridemia and recurrent pancreatitis. Trends Cardiovasc Med. 2020;30(2):80-85.
  3. Christian JB, Bourgeois N, Snipes R, Lowe KA. Prevalence of severe (500 to 2,000 mg/dl) hypertriglyceridemia in United States adults. Am J Cardiol. 2011;107(6):891-897.
  4. Davidson M, Stevenson M, Hsieh A, et al. The burden of familial chylomicronemia syndrome: Results from the global IN-FOCUS study. J Clin Lipidol. 2018;12(4):898-907.e2.

5 tips to help you choose your 2025 health benefits

2024-10-22T15:09:00

(BPT) – As millions of Americans evaluate their health plan options during this fall’s open enrollment season, a new survey finds that 3 in 5 Americans incorrectly defined key health care terms. This knowledge gap may result in less-than-ideal selections, which could cause you to miss out on plans that might better suit your needs and offer potential cost savings.

Enrollment timing: For people with coverage from their employer, open enrollment typically happens during a two- or three-week period between September and December. For those eligible for Medicare, the Medicare Annual Enrollment Period runs from Oct. 15 to Dec. 7 each year. For people shopping for individual plans on the Health Insurance Marketplace, open enrollment begins Nov. 1, 2024, and ends Jan. 15, 2025, in most states.

Here are a few tips to consider when choosing a plan that may help lead you to better health and cost savings:

1. Plan ahead. Take time to understand the benefits, services and costs of plans available — including what might have changed with your current coverage. Pay attention to more than just the monthly premium, also understanding what out-of-pocket costs like deductibles, copays and coinsurance you may be responsible for. Resources like JustPlainClear.com and MedicareMadeClear.com can provide valuable assistance.

Medicare members and caregivers: As you weigh your options, assess the differences between Original Medicare and Medicare Advantage. Visit MedicareEducation.com to find answers to questions about eligibility, plan choices, prescription coverage and more.

2. Help prevent unexpected costs. Check if your doctor is in your plan’s provider network, since visiting in-network providers can help reduce out-of-pocket costs. Make sure your medications will be covered next year by the plan you choose. And consider filling your prescriptions at an in-network pharmacy or with home delivery — more cost-efficient options.

Medicare members and caregivers: Original Medicare doesn’t generally cover prescription drugs. Consider enrolling in a Medicare Advantage plan with prescription drug coverage to help keep medication costs in check.

3. Explore mental health coverage. Beyond in-person mental health care, you may have access to a virtual network of therapists and psychiatrists, along with advocates to help find the right behavioral health care or resources.

Medicare members and caregivers: Look for plans that offer virtual mental health care with a $0 copay.

4. Look into specialty benefits. Additional benefits, such as dental, vision, hearing or critical illness insurance, are often available and may contribute to overall well-being.

Medicare members and caregivers: Original Medicare doesn’t cover most dental, vision and hearing services, but many Medicare Advantage plans do.

5. Consider wellness programs. Many health plans offer incentives for taking healthier actions, like completing a health survey or exercising. Others provide personalized support to those living with common chronic conditions like Type 2 diabetes.

Medicare members and caregivers: Many Medicare Advantage plans offer gym memberships and wellness programs for members at no additional cost.

Visit UHCOpenEnrollment.com to learn more.

How early screening for type 1 diabetes and follow up monitoring can help you plan for the future

2024-10-22T08:01:00

(BPT) – Sponsored by Sanofi

Life often brings surprises, and many can be welcome. However, sometimes being caught off guard can be scary or overwhelming. This is especially true when it comes to your health, for example receiving an unexpected diagnosis like that of type 1 diabetes.

People often find out they have type 1 diabetes when they are in a later stage (stage 3) of the disease, which is when clinical symptoms begin to occur. In stage three, the body is no longer able to make enough or any insulin which causes blood sugar levels to rise much higher than the normal range. What happens next is lifelong dependence on insulin injections to maintain target blood sugar levels — and it may carry a heavy burden for individuals and their families alike.

Karim Jones and her family know this feeling all too well. Unknowingly, Jones’ daughter was experiencing tell-tale symptoms of type 1 diabetes, including extreme thirst, unexplained weight loss, and fatigue. When they went to the doctor, Jones remembered a previous conversation she had with a friend and asked the doctor to test her daughter for type 1 diabetes. It turned out her daughter not only had type 1 diabetes, but she was also in diabetic ketoacidosis (DKA), a life-threatening complication of type 1 diabetes.

Jones immediately received a deluge of information about managing her daughter’s blood sugar levels, the impact of diet, insulin dosing, and more, which made her feel overwhelmed and uncertain. When the stakes are as high as supporting a child’s health, more time to learn how to manage the disease can be extremely valuable. Early detection of type 1 diabetes is possible through screening and this advanced information can provide time to prepare for the future — but early screening for type 1 diabetes is relatively uncommon prior to diagnosis due largely to a lack of awareness. The1Pledge.com has more information on why early screening can be important.

“Knowing in advance, even by just one month, would have made an important difference for our entire family and given us the time to prepare in a way that wasn’t so rushed,” Jones shares. “Type 1 diabetes management requires countless extra decisions each day that I’m responsible for as a caregiver. It’s on me to manage my daughter’s health, and the mental load that goes along with that responsibility is one of the hardest parts.”

Indeed, advanced notice through a blood test that can detect type 1 diabetes-related autoantibodies early can help families in a multitude of ways, including but not limited to:

  • Building a multidisciplinary care team of doctors, nurses, nutritionists, and other supportive healthcare providers to meet with (typically every 3-6 months).
  • Learning more about the disease from that care team to better recognize symptoms when they do arise (stage 3) and potentially reducing the risk of going through DKA by up to 50%.
  • Developing the skills needed to manage the disease, in the face of up to 10 finger pricks per day to measure blood sugar and an estimated 1,460 insulin injections each year.

“My husband and I agreed that we never wanted to be caught off guard like that again, so after my daughter was diagnosed, our whole family got screened, including our other three children,” Jones notes. “As a parent, you would do anything for your kids, and when I learned screening was an option after my daughter’s diagnosis, I wasn’t going to miss out on an opportunity to know if my family was at risk. Before we got the family screened, I felt like I was living in fear, worried that if my child was thirsty, it might be a red flag; now that we’ve gotten the kids screened, I feel better informed.”

Jones continued: “As a mother who has lived through an unexpected diagnosis, I believe everyone should get screened. About 90% of people diagnosed with type 1 diabetes do not have a family history of the disease, which was the case for my daughter. If it’s fear of knowing that’s stopping you from getting screened, hear me when I say that you don’t want to get to a point where your child is experiencing DKA — that is much, much scarier. Knowing in advance may make a difference for your family.”

Talk to your doctor about screening for type 1 diabetes.

Sanofi does not provide medical advice, diagnosis, or treatment — information is provided for educational purposes only. Your doctor is the best source of health information. Talk to your doctor if you have any questions about your health or treatment.

Karim Jones is a paid spokesperson for Sanofi.

This holiday season, keep medicines up and away to keep kids safe

2024-10-22T09:01:00

(BPT) – The holidays are such a delicious time of year. Halloween candy can last until Thanksgiving, the whole house smells of baking cookies, and chocolates and other sweet treats can be found around the house. It’s also respiratory virus season, when families will typically stock up on medicines to treat those runny noses, coughs and aches. For parents, grandparents, and other caregivers, it’s especially important to realize that kids can confuse medicines, vitamins, and other supplements for candy.

Each year, approximately 35,000 children are brought to hospital emergency rooms after they find and get into medicines that are left within their sight and reach. Many medicines and supplements — including those in gummy form — can look like candy, and it can be difficult for young children (and even adults) to tell the difference.

It’s important to teach young children that medicine is not candy and that they should never take medicines on their own. The Up and Away Campaign is a safe medicine storage initiative, led by the Centers for Disease Control and Prevention in partnership with the Health In Hand Foundation, to help prevent unintentional medication overdoses in young children. It’s about always putting medicines, vitamins, and other supplements, including those in gummy form, “up and away,” where kids can’t reach or see them.

Here are eight important tips from the Up and Away Campaign to help parents, grandparents, and other caregivers keep young children safe:

1. Pick a place your children cannot reach. Find a place in your home that is too high for children to reach or see. Different families will have different places. Walk around your home and find the best place to keep your medicines, vitamins, and other supplements — including those in gummy form — up and away, even between doses.

2. Never leave medicine by a child’s bedside. If your child is ill and needs doses every few hours, it might be tempting to leave the medicine in handy reach. Put it up and away instead.

3. Mind your purse or bag. Make sure that medicines carried with you (in purses, bags, pockets, or pill organizers) are also kept out of sight and reach of young children.

4. Never leave loose pills or liquid medicines out on a counter, table or child’s bedside. To a young child, pills can look like candy and liquid medicines can look like sugary drinks, so it’s important to keep them out of children’s reach and sight.

5. Keep medicines in child-resistant containers. Always relock the safety cap on a medicine bottle. If the medicine has a locking cap that turns, twist it until you can’t twist anymore or hear the “click.” If you must put medicines in other containers, such as pill organizers, check to see if they have child-resistant features. Many do not and can be easily opened by young children.

6. Teach your children about medicine safety. It’s important to teach your children what medicine is and why you or another trusted caregiver must be the one to give it to them. Never tell children medicine is candy, even if they don’t like to take their medicine.

7. Remind guests and babysitters to keep purses, bags or coats that have medicines in them up and away and out of sight when they’re in your home. If you bring medicines with you to a home with young children, don’t be shy about asking for a place to put your medicines that is out of reach and sight of curious young kids.

8. Be prepared for an emergency. Call Poison Help at 800.222.1222 right away if you think your child might have gotten into a medicine, vitamin, or other supplement (including those in gummy form), even if you are not completely sure. Before you need it, make a contact for Poison Help in your phone so it’s ready in an emergency.

For more information, resources and help, visit https://upandaway.org/en/.

A new heat pump + insulation = max efficiency

2024-10-22T12:35:00

(BPT) – Thinking about upgrading your home’s HVAC system with a new heat pump? It’s the perfect time to add or upgrade your home’s insulation, too.

These two projects not only work together to help you maximize comfort and savings, they’re also eligible for substantial financial incentives thanks to the Inflation Reduction Act to help lower the cost of these upgrades. With federal tax credits, generous utility rebates, and state rebates, you can combine these different savings to significantly lower costs on top of energy savings.

Both projects are part of an ENERGY STAR Home Upgrade — a set of high-impact improvements that work together to help you live comfortably and maximize your energy savings. And the savings from these two projects can really add up. For the average American household, almost half of the annual energy bill goes toward heating and cooling — approximately $900 a year. Finding ways to efficiently heat and cool your home is key to reducing energy usage and saving money year-round.

Why a heat pump? ENERGY STAR certified heat pump HVAC is so efficient it can deliver up to three times more heat energy to a home than the electrical energy it consumes. It’s a little mind-blowing when you think about it. This is possible because a heat pump moves heat rather than converting it from a fuel, as combustion heating systems do. That’s why the federal government is offering these credits and rebates — this technology offers superior efficiency that allows households to save significant energy and money, while also being a better choice for the environment.

A heat pump also cools

It’s a common misconception that heat pumps only provide heat. Not true! Despite the misleading name, heat pumps do double duty with both heating and cooling and are becoming a more popular solution in the U.S. due to their superior energy efficiency. It makes sense to combine the project with air sealing and adding insulation — you’ll get the most savings and comfort with that one-two punch.

By sealing air leaks and improving the insulation in your home, the new heat pump won’t need to work as hard to regulate temperatures, which helps make your home more comfortable while reducing energy usage and increasing your savings. Adding to or enhancing your attic insulation levels may also allow you to choose a smaller, less expensive heat pump.

ENERGY STAR certified ducted and mini-split heat pumps are available from a variety of manufacturers. Not sure where to start? ENERGY STAR offers online guidance to help customers, contractors, remodelers, or builders find heat pumps that qualify for these incentives.

Adding insulation? Start with the attic

It’s wise to focus on your attic’s insulation because it will help keep your house comfortable all year long. Here’s how:

In the winter, as your system is warming your house, the heat rises. If there are holes in the attic floor and low insulation levels, that warm air will rise right out of the top of the house. Sealing air leaks and adding insulation in the attic can hold that warm air in and insulate from the cold outdoor air.

In summer, the sun beats down on the roof, overheating the air in the attic. That heat radiates down into your home, making it harder to cool. Adding a good amount of insulation in the attic prevents that heat from getting into the house, which increases comfort and reduces cooling costs.

Since attics are often unfinished, insulation is typically easy and inexpensive to add there. In many homes, sealing air leaks in the attic and insulating the attic floor are the best ways to improve the home envelope cost-effectively.

Don’t forget your ductwork

Since airflow is essential to the HVAC system, improving ductwork when installing a new system is common sense. While you’re in the attic adding insulation, make sure to inspect those ducts. Sealing, straightening, reconnecting and repairing holes in ducts can significantly improve the performance of the heating and cooling system. Adding insulation around the ducts that run through hot attics can also improve performance and energy savings.

ENERGY STAR has you covered

ENERGY STAR is the government-backed symbol for energy efficiency, providing simple, credible, and unbiased information that consumers and businesses rely on to make well-informed decisions. Since 1992, ENERGY STAR and its partners helped American families and businesses avoid more than $500 billion in energy costs and achieve more than 4 billion metric tons of greenhouse gas reductions. Visit energystar.gov/homesavings to find available savings on energy saving upgrades in your area.