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Seizure Reduction Starts with Epilepsy Awareness

2024-10-28T07:01:00

(BPT) – This article is sponsored by SK Life Science, Inc.

Epilepsy is a neurological disorder that affects over 3 million Americans, and remains misunderstood by many. Characterized by unpredictable seizures, it can have a profound impact on a person’s day-to-day activities, relationships, and mental health. Yet, with increased awareness, education, and access to proper treatment, those living with epilepsy can work toward a life with fewer seizures.

This November, as the nation observes National Epilepsy Awareness Month, it’s an important opportunity to shed light on this often-misunderstood condition and advocate for better care and support for the epilepsy community.

Why Epilepsy Awareness Matters

Despite its prevalence, many misconceptions about epilepsy persist. Seizures, which vary widely in type and severity, are not always easy to identify, and the causes of epilepsy can be complex, ranging from genetics to brain injury. Public awareness campaigns during National Epilepsy Awareness Month aim to dispel myths, highlight the realities of living with epilepsy, and encourage people to learn more about seizure first aid.

Educating the public is crucial, not only to improve the lives of those with epilepsy but also to foster an understanding community. When those around them—family, friends, coworkers—know how to respond to a seizure, it can lead to faster intervention and a stronger support system for the person experiencing the seizure.

Striving for Better Outcomes

While living with epilepsy presents challenges, many people are unaware of the progress in seizure management and treatment options. Seizure control has come a long way in recent years, with advances in medications and individualized treatment plans offering hope to many who may have felt they had few options.

One key step for patients is working closely with a doctor, often an epileptologist or neurologist, to find the right treatment plan for their specific condition. Epileptologists are experts in managing epilepsy and can help patients explore the latest therapies designed to target uncontrolled seizures, empowering them to regain control of their lives.

The Path to Seizure Reduction

National Epilepsy Awareness Month highlights the important goal shared by many patients and doctors: reducing the frequency and impact of seizures. While eliminating seizures entirely may not always be possible, today’s treatments offer promising outcomes. It’s essential for individuals with epilepsy to consult regularly with their healthcare providers to evaluate and adjust their treatment plans to achieve the best possible seizure reduction.

One such treatment option is XCOPRI® (cenobamate tablets) CV, a prescription medication approved for the treatment of partial-onset seizures in adults 18 and older, which has been shown to reduce the frequency of seizures in some patients. If you or a loved one struggles with uncontrolled seizures, consider discussing treatment options like XCOPRI with your doctor.

Like any medication, XCOPRI has risks and benefits. Do not take XCOPRI if you are allergic to it or have a genetic problem (called familial short QT syndrome) that affects the electrical system of the heart. XCOPRI can have serious side effects including serious allergic reaction which may affect organs and other parts of your body like the liver or blood cells. XCOPRI may cause problems with the electrical system of the heart (QT shortening). Antiseizure drugs, including XCOPRI, may cause suicidal thoughts or actions in a very small number of people, about 1 in 500. Call your doctor right away if you have suicidal thoughts or actions, or new or worsening depression, anxiety, or irritability. XCOPRI may cause problems that affect your nervous system, including dizziness, trouble walking or with coordination, feeling sleepy and tired, trouble concentrating, remembering and thinking clearly, and vision problems. Do not drive, operate heavy machinery, or do other dangerous activities until you know how XCOPRI affects you.

These are not all of XCOPRI’s side effects. We encourage you to read the Important Safety Information included at the end of this article. Before considering XCOPRI®, it is vital to consult with your healthcare provider to determine if it is suitable for your specific needs. For more information, please visit www.xcopri.com.

How You Can Help

Whether you live with epilepsy or want to support someone who does, there are many ways to get involved during National Epilepsy Awareness Month. Take time to learn about seizure first aid, advocate for increased research funding, or raise awareness in your community or online. Every action brings us closer to a world where individuals living with epilepsy can experience better seizure management and thrive with greater confidence and support.

IMPORTANT SAFETY INFORMATION and INDICATION for XCOPRI® (cenobamate tablets) CV

DO NOT TAKE XCOPRI IF YOU:

  • Are allergic to cenobamate or any of the other ingredients in XCOPRI.
  • Have a genetic problem (called Familial Short QT syndrome) that affects the electrical system of the heart.

XCOPRI CAN CAUSE SERIOUS SIDE EFFECTS, INCLUDING:

Allergic reactions: XCOPRI can cause serious skin rash or other serious allergic reactions which may affect organs and other parts of your body like the liver or blood cells. You may or may not have a rash with these types of reactions. Call your healthcare provider right away and go to the nearest emergency room if you have any of the following: swelling of your face, eyes, lips, or tongue, trouble swallowing or breathing, a skin rash, hives, fever, swollen glands, or sore throat that does not go away or comes and goes, painful sores in the mouth or around your eyes, yellowing of your skin or eyes, unusual bruising or bleeding, severe fatigue or weakness, severe muscle pain, frequent infections, or infections that do not go away. Take XCOPRI exactly as your healthcare provider tells you to take it. It is very important to increase your dose of XCOPRI slowly, as instructed by your healthcare provider.

QT shortening: XCOPRI may cause problems with the electrical system of the heart (QT shortening). Call your healthcare provider if you have symptoms of QT shortening including fast heartbeat (heart palpitations) that last a long time or fainting.

Suicidal behavior and ideation: Antiepileptic drugs, including XCOPRI, may cause suicidal thoughts or actions in a very small number of people, about 1 in 500. Call your health care provider right away if you have any of the following symptoms, especially if they are new, worse, or worry you: thoughts about suicide or dying; attempting to commit suicide; new or worse depression, anxiety, or irritability; feeling agitated or restless; panic attacks; trouble sleeping (insomnia); acting aggressive; being angry or violent; acting on dangerous impulses; an extreme increase in activity and talking (mania); or other unusual changes in behavior or mood.

Nervous system problems: XCOPRI may cause problems that affect your nervous system. Symptoms of nervous system problems include: dizziness, trouble walking or with coordination, feeling sleepy and tired, trouble concentrating, remembering, and thinking clearly, and vision problems. Do not drive, operate heavy machinery, or do other dangerous activities until you know how XCOPRI affects you.

Do not drink alcohol or take other medicines that can make you sleepy or dizzy while taking XCOPRI without first talking to your healthcare provider.

DISCONTINUATION:

Do not stop taking XCOPRI without first talking to your healthcare provider. Stopping XCOPRI suddenly can cause serious problems. Stopping seizure medicine suddenly in a patient who has epilepsy can cause seizures that will not stop (status epilepticus).

DRUG INTERACTIONS:

XCOPRI may affect the way other medicines work, and other medicines may affect how XCOPRI works. Do not start or stop other medicines without talking to your healthcare provider. Tell healthcare providers about all the medicines you take, including prescription and over-the-counter medicines, vitamins and herbal supplements.

PREGNANCY AND LACTATION:

XCOPRI may cause your birth control medicine to be less effective. Talk to your health care provider about the best birth control method to use.

Talk to your health care provider if you are pregnant or plan to become pregnant. It is not known if XCOPRI will harm your unborn baby. Tell your healthcare provider right away if you become pregnant while taking XCOPRI. You and your healthcare provider will decide if you should take XCOPRI while you are pregnant. If you become pregnant while taking XCOPRI, talk to your healthcare provider about registering with the North American Antiepileptic Drug (NAAED) Pregnancy Registry. The purpose of this registry is to collect information about the safety of antiepileptic medicine during pregnancy. You can enroll in this registry by calling 1-888-233-2334 or go to www.aedpregnancyregistry.org.

Talk to your health care provider if you are breastfeeding or plan to breastfeed. It is not known if XCOPRI passes into breastmilk. Talk to your healthcare provider about the best way to feed your baby while taking XCOPRI.

COMMON SIDE EFFECTS:

The most common side effects in patients taking XCOPRI include dizziness, sleepiness, headache, double vision, and feeling tired.

These are not all the possible side effects of XCOPRI. Tell your healthcare provider if you have any side effect that bothers you or that does not go away. For more information, ask your healthcare provider or pharmacist. Call your doctor for medical advice about side effects. You may report side effects to FDA at 1-800-FDA-1088 or at www.fda.gov/medwatch.

DRUG ABUSE:

XCOPRI is a federally controlled substance (CV) because it can be abused or lead to dependence. Keep XCOPRI in a safe place to prevent misuse and abuse. Selling or giving away XCOPRI may harm others and is against the law.

INDICATION:

XCOPRI is a prescription medicine used to treat partial-onset seizures in adults 18 years of age and older.

It is not known if XCOPRI is safe and effective in children under 18 years of age.

Please see additional patient information in the Medication Guide. This information does not take the place of talking with your healthcare provider about your condition or your treatment.

Please see full Prescribing Information and Medication Guide.

PM-US-XCOP-1495 10/24

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Merry meals: 5 expert tips to savor the holiday season

2024-10-28T09:17:00

(BPT) – With the holidays quickly approaching, it’s the perfect time to gather with loved ones and enjoy delicious, comforting meals. Whether you’re preparing a cozy brunch or a grand holiday dinner, elevate your celebrations with festive dishes. Celebrity chef and TV personality Pati Jinich shares five expert tips to add an extra layer of flavor and nutrition to your holiday cooking!

1. Give the gift of flavor and tradition

This holiday season, start a new tradition by organizing a family recipe exchange — an inspiring way to bring loved ones together. Whether it’s sharing cherished recipes passed down through generations or introducing new dishes that could become future family favorites, it’s a heartfelt way to celebrate. To add to the joy and further spread holiday cheer, consider gifting kitchen tools and supplies to the cooks and bakers in your family. These thoughtful culinary gifts will not only elevate their holiday meals but also create memories for years to come.

2. Create holiday magic in the kitchen together

Make holiday meal prep a joyful, shared experience by inviting loved ones into the kitchen. Whether it’s chopping fresh ingredients, mixing up favorite dishes, or rolling out dough for festive treats, everyone can play a part in the celebration. Even the little ones can get involved, from shaping cookies to serving as taste testers. By cooking together, you’ll not only lighten the load but also create delicious meals and heartwarming memories beyond the holiday season.

3. Fuel your festivities with a filling breakfast

Kick off your holiday celebrations with a hearty, egg-based breakfast that will fuel the whole family through the day’s activities. Keep things simple with classic favorites like omelets, scrambles or quiches. These easy-to-make dishes are packed with protein and provide the perfect foundation for a long day ahead. There’s no better way to begin the holiday than with a meal that’s both delicious and nourishing.

4. Elevate your tablescape with festive décor

Enhance your holiday table with festive décor that adds a touch of warmth and charm. Incorporating seasonal elements like candles, greenery and winter-themed place settings will create a cozy and inviting atmosphere that encourages conversation and connection, making every guest feel special. A thoughtfully styled tablescape not only complements your meal but also sets the stage for memorable holiday gatherings.

5. End celebrations on a sweet note with delicious desserts

No holiday meal is complete without a delicious dessert to bring everyone together and wrap up the festivities. Baking something from scratch adds a personal touch to your celebration. For the best results, it’s important to use high-quality ingredients like Eggland’s Best eggs that will take your holiday treats to the next level. With more than double the Vitamin B12 and 25% less saturated fat compared to ordinary eggs, Eggland’s Best eggs help balance indulgence with health-conscious choices, making them ideal for your holiday baking. To truly impress your guests this season, try this recipe for Dedos de Novia (Bride’s Cookies) from Eggland’s Best — a festive and delightful addition to your holiday table.

Dedos de Novia (Bride’s Cookies)

Prep time: 2 hours; Cook time: 13 minutes; Yield: 70 cookies

Ingredients

2 Eggland’s Best eggs, large. Yolks only

1 stick unsalted butter, 1/2 cup, at room temperature

1/2 cup vegetable shortening

1 cup powdered sugar, plus more for covering the cookies

2 teaspoons vanilla extract

2 cups all-purpose flour

1 teaspoon baking powder

1/2 teaspoon kosher salt

Instructions

  1. In a stand-mixer bowl fitted with the paddle attachment, beat butter, vegetable shortening and sugar at medium-low speed until soft and creamy, about 1-2 minutes. Add the Eggland’s Best egg yolks and vanilla extract. Continue mixing until incorporated. Reduce speed to low and add flour, baking powder and salt. Continue to mix until all ingredients are incorporated. Scrape mixture onto a piece of plastic wrap and refrigerate for two hours or up to a couple of days.
  2. When ready to bake, set oven racks in the upper and lower thirds of the oven and preheat to 350 degrees. Cover two baking sheets with parchment paper.
  3. Cut the dough into two pieces, leaving one in the refrigerator. Gently flatten dough and place it between two sheets of parchment, wax paper or plastic wrap. Using a rolling pin, roll to about 1/2-inch thickness. Using a sharp knife or bench scraper, cut the dough into 1/2-inch by 2-inch rectangles. Then, use a dinner knife or back side of a fork or spoon to make 2 shallow lines down the length of the cookie.
  4. Place cookies on baking sheets and bake for 12 to 13 minutes or until lightly golden on sides and bottoms. Remove from the oven.
  5. When cool enough to handle, gently dip cookies in a bowl containing powdered sugar and cover entirely. Eat or keep covered in a container with a lid until ready to eat.

Create memorable culinary moments this holiday season by following these five tips. To find more holiday recipes to spread joy and treat your loved ones, visit EgglandsBest.com.

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Big nutrients for little taste buds: What parents should look for in children’s vitamins

2024-10-28T09:01:00

(BPT) – Have you ever taken a close look at the ingredients in children’s vitamins? You may want to check out the label, because most supplements for children include ingredients you might not want to give your kids.

This came to the attention of two dads, Darren Litt and Adam Gillman, who discovered that most vitamin supplements for kids contained too much sugar, weird dyes and unnecessary additives — ingredients they didn’t want to give their kids every day. That made them realize that it was important for parents to have better options for kids’ wellness products.

“As new dads, we were shocked when we learned more about children’s vitamins,” said Darren Litt, co-founder of Hiya. “Many children’s vitamins are basically candy in disguise — often filled with a teaspoon of added sugar, artificial ingredients and other gummy additives that can contribute to cavities. We created Hiya because we wanted to support a world where healthy kids come first. Quality children’s wellness products should be more widely available for parents.”

Driven by a passion to create the best products for their own kids, Darren and Adam brought together a broad team of pediatricians, nutritionists, food scientists, health experts and parents to create a range of health and wellness supplements for kids — starting with the inaugural product, the Kids Daily Multivitamin. This multivitamin was the core Hiya product for almost two years, before they released the Kids Daily Probiotic, and then went on to release additional super products like Kids Bedtime Essentials and Kids Greens + Superfoods. Hiya just announced their newest product, Kids Daily Immune. Each product is formulated 100% for kids — this means looking at dosage, bioavailability, growth and development needs, taste profile and more.

“Being a parent can be hard enough,” added Litt. “Choosing vitamins shouldn’t have to be so difficult.”

Innovation starts with the Hiya family

Hiya continually speaks with families to understand their evolving needs and preferences. They ask foundational questions such as: What are our parents asking for? What’s the latest in nutritional science that we can use to solve a problem or fill a gap? How will this new product improve their lives? This direct connection to Hiya families is the lifeblood of the brand. From there, Hiya brings in a wide variety of health experts to formulate their vitamins and supplements.

Hiya uses a combination of honest and essential ingredients that are best for kids — fueling growth, immune health and wellness from the inside out. Their products are Non-GMO and vegan, and free of sugar, gluten, dairy, soy, common allergens and unnecessary additives.

The bottom line? All products are parent- and kid-approved too.

The stamp of approval through third-party testing

As parents themselves, Hiya’s co-founders understand the importance of children’s health and safety. In a market where supplement quality can vastly vary, the brand is steadfast in their commitment to meeting and exceeding the strictest industry standards.

To ensure this, Hiya undergoes rigorous third-party testing on both their vitamins as well as their refillable bottles. They work with labs that are FDA-compliant and GMP-certified, leveraging scientifically backed testing methods.

Unlike many brands that test very occasionally, Hiya tests each batch of vitamins for purity, potency and safety, testing for high levels of heavy metals and microbials. The most widely accepted approach for testing for heavy metals, such as lead, is a technique known as “ICP-MS.” Hiya follows rigorous standards to ensure that all levels are well below the strictest standards nationwide, set by California’s Prop 65.

They take it a step further and test their bottles, too. Testing protocol is based on CPSC (Consumer Product Safety Commission) approved methods, such as “ICP-OES.”

Hiya takes testing very seriously, since kids are the priority.

Have fun with healthy habits

Hiya strives to help parents build that connection between healthy habits and fun with their children. Hiya’s products come with a refillable bottle and stickers to make the experience memorable. More than just a delivery, unboxing Hiya can be an exciting event that sparks family conversations about health and nutrition.

Select the ideal supplements

It is recommended to consider which supplements your child needs to be their best, and select accordingly. As with any medications or vitamins, please consult your child’s pediatrician before beginning a new supplement.

Hiya offers a variety of options to help parents who want to support their kids’ health:

  • Kids Daily Immune is a daily chewable designed to support kids’ growing immune systems so they can maintain their natural defenses. The chewable includes immune-supporting ingredients individually selected to keep kids healthy no matter the season or environment.
  • Kids Daily Multivitamin offers a daily chewable with 15+ essential vitamins and minerals and no added sugar, artificial dyes, or gummy additives.
  • Kids Daily Greens + Superfoods is a greens powder formulated to be safe and effective for kids. It’s made with 55+ whole-food sourced ingredients to support growth, digestion and brain health.
  • Kids Daily Probiotic provides 10 billion live cultures to support childhood immune health, gut health and nutrient absorption in a supercharged chewable probiotic.
  • Kids Bedtime Essentials is a non-habit-forming nightly chewable to help kids relax before bed and wake up rejuvenated and refreshed, with no melatonin or added sugar.
  • Kids Daily Iron+ offers a unique form of iron that’s gentle on kids’ stomachs and is thoroughly absorbed to help with the #1 mineral deficiency among kids in a daily chewable.

Parents on a mission

Hiya is on a mission to reimagine children’s health through optimized nutrition, and so far one million parents (and counting!) have trusted Hiya to provide their children with supplements to help support their well-being without unnecessary additives. That adds up to more than 10 million Hiya mornings every month.

How much sugar has that cut out of kids’ daily intake? Considering that some gummy vitamins can include about 5 grams of sugar … well, you do the math! It’s a lot.

Ready to learn more about Hiya supplements to support your family’s health? Visit HiyaHealth.com.

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Seniors: Prevent falls with these 3 easy moves

2024-10-23T16:25:00

(BPT) – If you’re an American over age 65, or have a senior loved one, you know how big of a risk falls can be in daily life. As people age, their balance becomes less steady, which can lead to an increase in stumbles and tumbles. But it can mean more than the inconvenience of a turned ankle. The Centers for Disease Control and Prevention (CDC) reports falls are the leading cause of injury and death from injury among people 65 and older. About three million seniors visit the emergency room due to falls every year.

The good news? There are simple steps you can take to reduce your risk of falling. It’s about increasing balance and stability.

“While the risk of falls increases as we age, it’s not inevitable,” said Dina Sexton, a national trainer for SilverSneakers, the nation’s leading fitness and well-being improvement program for seniors. “There are many simple, customizable exercises that can reduce the risk of falls. A steady sense of balance is the key.”

For those 65+, the right health plan can provide benefits to improve balance and prevent falls. According to a recent study by Tivity Health, a leading provider of health and wellness solutions, including SilverSneakers, 22% of Medicare Advantage beneficiaries report having fallen in the past year compared to 26% in traditional Medicare. Those who participate in SilverSneakers report the fewest falls at 14%. SilverSneakers members are also less likely to feel unsteady when standing or walking and are less worried about falling.

Almost all physical activity helps lower the risk of falls. Movement of any kind improves body awareness, helps build bone density and even increases muscle mass. Falls happen most often while you’re doing something mundane — going down a flight of stairs, changing a lightbulb, or walking on a slippery floor. That’s why it’s important to focus on “functional training,” which helps strengthen your body for everyday activities, said Sexton.

What’s functional training? It’s an exercise designed to mimic the types of movements you do in everyday life, like squatting, lifting, stepping up and down, balancing, walking, reaching above your head and more.

These types of moves require multiple muscle groups to work together, boosting coordination and allowing you to move in different planes of motion — from side to side and back and forth. Doing this helps improve joint health, and it gives you a better understanding of the way you move in general. Put another way, it gives people the strength and stability needed to avoid falls and ultimately to live independently.

Here are a few exercises you can do at home to help avoid falls. But before you do, consult a doctor for their advice and recommendations.

Sit-to-stand

Difficulty getting up and down from things like a dining room chair or a toilet seat can cause you to feel unsteady, which contributes to falls.

  • Sit on a sturdy chair of standard height. Have a support in front of you, like the kitchen table or a countertop, to use if you feel unsteady.
  • Lean forward and squeeze your gluteal muscles to stand up. The goal is to not use your hands.
  • Repeat 10 times.

Balance exercises

Balance is the key to stability. Practice your balance this way:

  • Stand by your kitchen counter or in a corner, so you’ll have something to reach out to if you lose your balance.
  • Move your feet apart, shoulder width. Hold that pose steady, without swaying, for 10 seconds with your eyes open. Work your way up to 30 seconds.
  • When you can hold that pose for 30 seconds without swaying, do the same with your feet together.
  • When you feel confident with your feet together, do the same on one foot, then the other.
  • When you’re confident with those poses, do them all with your eyes closed.

Heel raise

Heel raises can strengthen your calf and thigh muscles, improving balance and flexibility.

  • Stand in front of your kitchen counter or by a sturdy kitchen chair with your feet flat on the floor, shoulder-width apart.
  • Lift both heels off the floor, so you’re standing on the balls of your feet.
  • Lower your heels so your feet are flat.
  • Repeat 10-15 times.

The key to these exercises, said Sexton, is to do them consistently. A few minutes a day will make a big difference in your balance, flexibility and strength.

Tivity Health, through its flagship brand SilverSneakers, is the nation’s leading community fitness and well-being improvement program that helps eligible Medicare Advantage members stay physically active, socially engaged and mentally sharp. The program includes a fitness center membership and virtual classes that foster social interaction among members and encourage them to live healthy, active lifestyles. The program is available to more than 19 million Americans through many Medicare Advantage plans, Medicare Supplement carriers and group retiree plans.

With the right Medicare Advantage plan, joining a senior fitness program is easy. And, with over 30 years of experience serving the senior population and offering classes for every fitness level, it’s an excellent way to get fit, stay engaged, reduce falls and be healthy. If you aren’t currently on an MA plan, the annual Medicare Enrollment Period between Oct. 15 and Dec. 7 is a perfect time to review plans and find one that includes SilverSneakers. Visit silversneakers.com to learn more.

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Scarlett Johansson, Taylor Swift and Sabrina Carpenter Top McAfee’s 2024 Celebrity Hacker Hotlist for AI-Driven Online Scams

2024-10-23T10:43:00

(BPT) – The line between reality and deception has blurred in our digital world, with cybercriminals leveraging cutting-edge AI technologies to exploit our trust in celebrities. McAfee’s 2024 Celebrity Hacker Hotlist sheds light on a growing threat — online scams using the identities of our favorite stars to trick and steal from us.

Actors, Singers, Online Influencers Lead the Celebrity Hacker Hotlist

Actress Scarlett Johansson leads the list of most exploited celebrity names. Renowned for her roles in Marvel’s Black Widow and Lost in Translation, this time, Johansson isn’t making headlines for a movie — she’s ranked as the U.S. celebrity whose name is most frequently used in online scams.

Johansson’s likeness has been used in AI-generated deepfakes, from unauthorized ads to fake endorsements, creating a major risk for unsuspecting fans.

Celebrities like Kylie Jenner, Taylor Swift, and Tom Hanks also find themselves in the top 10, with hackers exploiting their images, voices, and reputations to deceive internet users. Whether it’s for fake giveaways, cryptocurrency scams, or disinformation campaigns, these stars are unwilling participants in the cybercrime ecosystem.

McAfee’s 2024 Hacker Celebrity Hot List: Top Ten

McAfee’s Threats Research Team compiled the Celebrity Hacker Hotlist by identifying the celebrities — including social media influencers — whose names and likenesses are most often exploited in malicious deepfake scams and unsafe search results that can lead consumers to unknowingly install malware or engage with scams that jeopardize their data, privacy, and identity.

The top ten list includes a combination of longtime talent and more recent names from various fields, showcasing their potential influence on consumers of all generations:

1. Scarlett Johansson: Actress and singer whose name and likeness has been used without permission for advertisements and endorsements, outspoken advocate against non-consensual AI-generated content

2. Kylie Jenner: Reality star and influencer whose name and likeness has been used without permission for social media giveaway scams and fake Kylie Cosmetics products and websites

3. Taylor Swift: Singer whose name and likeness has been used without permission for celebrity endorsement, ticket scams, and product giveaway scams, as well as for disinformation (political endorsement)

4. Anya Taylor-Joy: Actress whose name and social account/likeness has been used without permission for a giveaway scam, and to spread misinformation about her streaming series

5. Tom Hanks: Actor whose name and likeness has been used without permission to promote “miracle cures and wonder drugs”

6. Sabrina Carpenter: Singer whose name and likeness has been used without permission for fake ticketing scams and to advertise an app for creating sexually explicit images

7. Sydney Sweeney: Actress whose name and likeness has been used without permission for crypto scams

8. Blake Lively: Actress whose likeness was used without permission in a weight loss gummy scam

9. Johnny Depp: Actor whose likeness has been used without permission in giveaway, crypto, and fundraising scams

10. Addison Rae: Singer and actress whose likeness has been used without permission for fake endorsements, giveaways, and crypto scams

The Rise of AI Deepfakes in Cybercrime

AI is revolutionizing industries, but it’s also given cybercriminals a powerful new tool: the deepfake. These highly realistic video or audio clips can mimic the likeness of a person, making it nearly impossible to tell whether the content is real or fake. Deepfakes of celebrities are being used to promote fraudulent products, steal personal information, and trick people into downloading malware. Imagine watching a video of your favorite star endorsing a new product, only to find out it wasn’t them at all. This is a reality many fans face as scammers get better at crafting fake content. Some of these AI-generated videos are so convincing that even the savviest of internet users can fall for them.

The Impact on Fans and Celebrities

While these scams primarily aim to steal money or personal data from consumers, the effects are far-reaching. For fans, the consequences can be devastating, with financial losses ranging from a few hundred dollars to over half a million. In addition to the financial risks, victims often feel violated after engaging with fraudulent content. For celebrities, these scams can have a serious impact on their public image and brand. Many stars, including Johansson, have taken a firm stand against the unauthorized use of their images in AI-generated content. As Johansson has publicly expressed, it’s not just about personal privacy but about the broader implications of AI and the need for accountability in the tech world.

Staying Safe in the Age of AI Scams

As AI becomes more accessible, these scams are only expected to rise. To combat this growing issue, McAfee has introduced the McAfee Deepfake Detector, the first AI-powered tool of its kind. Trained on hundreds of thousands of samples, this tool can alert users within seconds if a video or audio clip contains AI-altered content. But technology alone can’t keep you safe. Here are some practical tips to protect yourself from AI-generated scams:

1. Scrutinize Social Media: Social media platforms are hotbeds for disinformation and scams. Be skeptical of shocking or too-good-to-be-true claims, especially if they involve celebrities.

2. Validate Sources: Always verify claims by cross-checking with reliable news outlets and websites. Don’t trust content without fact-checking it first.

3. Detect Deepfakes: Look closely at the content for unnatural features — odd blinking patterns, mismatched audio, or distorted body parts can be signs of a deepfake.

4. Engage with Caution: Avoid commenting on, sharing, or even clicking on unverified social media posts. Engaging with them can increase your exposure to scams.

5. Be Mindful of Your Information: Never give out your personal details to unverified sources or websites. Phishing scams often request sensitive information under the guise of a celebrity endorsement or giveaway.

In 2024, staying safe online means being aware of the rapidly evolving landscape of AI and cybercrime. Scammers are getting better at mimicking trusted names to deceive fans. With AI-powered tools like deepfake detectors and informed vigilance, we can reduce the risk of falling victim to these digital traps. Stay informed, stay cautious, and always think twice before clicking on a too-good-to-be-true celebrity endorsement. For more information about McAfee’s 2024 Celebrity Hacker Hotlist and ways to protect yourself, visit https://www.mcafee.ai.

Methodology

The study was conducted by McAfee® threat intelligence researchers to determine the number of risky sites and amount of misleading content generated by searching a celebrity name with commonly used terms. A risk score was calculated for each celebrity. McAfee’s WebAdvisor browser extension leverages McAfee’s technology to protect users from malicious websites and, when turned on, rates nearly every internet website it finds, using red, yellow and green icons to indicate the website’s risk level and blocking access to or warning a user if they click on a malicious or risky URL link. Ratings are created by using patented advanced technology to conduct automated website tests and works with Chrome, Edge, Safari, and Firefox.

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Clinical trials are needed to develop new medicines for children and teens living with seizures

2024-10-23T05:01:00

(BPT) – Epilepsy at any age can be challenging to navigate, even more so when a patient is a young child or teen. Some medications can help manage seizures for many patients. However, one-third of children with newly diagnosed epilepsy fail the first antiseizure medication they were prescribed. These patients may experience seizures even when taking their medications as prescribed.

The impact of seizures on children and teens

Seizures may be a frightening experience for a child. When their symptoms can’t be controlled by medication, pediatric patients with seizures can develop lifelong challenges.

“I’ve witnessed firsthand the negative impact seizures can have on the quality of life of children and teens,” said Sunita Misra, M.D., Ph.D., and chief medical officer at SK Life Science, a company that develops treatments for seizure disorders.

During her career, Dr. Misra has cared for drug-resistant pediatric epilepsy patients. “When traditional medications are unsuccessful in managing seizures, young patients and their families must contend with health challenges that affect a child’s ability to thrive academically, socially and emotionally,” explained Dr. Misra.

For young children, seizures may disrupt a child’s brain development, which can lead to a serious impact on their lives. According to the Epilepsy Foundation, seizures can stymie a child’s academic achievements and lead to emotional and behavioral issues.

Also, because seizures aren’t predictable, a child may experience anxiety and distress, preventing them from fully engaging in school and social activities. The unpredictability can also be challenging for caregivers to maintain jobs, impacting the financial well-being of families, which can cause more anxiety for a child and their loved ones.

Teens living with seizure disorders can feel left out when it comes to adolescent milestones. For example, getting a driver’s license is a rite of passage, representing independence, maturity and freedom. Adolescents contending with uncontrolled seizures generally cannot obtain their license, which can make them feel left out, isolated from their peers and dependent on others.

How clinical trials may help

Researchers are constantly conducting studies to try to develop new or improved treatments that can address the unmet needs of pediatric patients living with seizures.

For example, SK Life Science is currently enrolling patients in three clinical trials investigating a potential treatment for teens with primary generalized tonic-clonic (PGTC) seizures and young children with partial-(focal) onset seizures.

The PGTC clinical trial is a global Phase 3 study activated in the U.S. as well as 11 other countries. This trial recruits pediatric patients between the ages of 12 and 17 who continue to have PGTC seizures despite traditional medications.

The remaining two trials focus on pediatric partial-onset seizures. The Phase 1 trial is an open-label pharmacokinetics study that is currently recruiting patients between the ages of 2 to 5 in the U.S., South Korea, Hungary and Spain. Meanwhile, the Phase 3 trial is an open-label safety study also recruiting in the U.S., South Korea, Hungary and Spain, as well as Australia and Poland.

“At SK Life Science, we are currently working to provide alternatives for younger patients,” said Dr. Misra. “If you are a parent of an adolescent diagnosed with PGTC or of a toddler or young child with partial-onset seizures, you may want to speak with your doctor to see if your child can participate in these trials.” To learn more, visit www.sklifescienceinc.com.

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Listening to your ill-tuition: 5 health symptoms women shouldn’t ignore, according to a doctor

2024-10-23T08:47:00

(BPT) – When it comes to health, women’s intuition isn’t just a hunch — it’s practically a superpower. According to recent research from MD Live by Evernorth, more than two-thirds of women say they have a sixth sense when it comes to their health. This “ill-tuition” is the innate ability to sense when something may be wrong with your body — and 81% of women trust it. Yet, despite this trust, most women hold off on seeking care until their symptoms interfere with their daily lives, instead of being proactive at the first sign that something is off. This delay can lead to unnecessary worsening of symptoms.

“Many common symptoms can be early warning signs of an underlying health condition. Ignoring your body’s signals can prevent timely diagnosis and treatment,” explains Dr. Vontrelle Roundtree, Associate Chief Medical Officer for MD Live by Evernorth. “Trusting your intuition and acting on it early can make all the difference in managing your health.”

Roundtree discusses five common symptoms that women tend to dismiss, according to the research, what conditions they may point to and why it’s important to seek timely medical care when your intuition sounds the alarm.

1. Itching that doesn’t go away

Itching may seem like just a minor annoyance, but if it’s persistent, it may point to various underlying health issues. Itching could signal hormonal fluctuations, skin conditions like eczema, or even liver or kidney problems. Itching without a visible rash can be a sign of broader health issues because it often indicates that the root cause lies beneath the surface of the skin rather than on it. For pregnant women, persistent itching may be a symptom of cholestasis, a liver condition that requires immediate medical attention.

2. Persistent bloating

Bloating is normal after eating a big meal or when experiencing the occasional digestive issue. But, when bloating occurs frequently, it could be a sign of gastrointestinal disorders such as irritable bowel syndrome (IBS). Bloating that gets worse over time could be a symptom of stomach inflammation or certain cancers. In fact, bloating is one of the more common early warning signs of ovarian cancer, caused by the buildup of fluids in the stomach.

3. Fatigue

Feeling tired is often unavoidable, especially for women balancing work, family and other responsibilities. However, when that tiredness becomes persistent and starts affecting your quality of life, it might point to fatigue, a debilitating condition that significantly impacts your daily life. Fatigue is often a symptom of an underlying chronic condition, such as diabetes, heart disease, depression or thyroid disorders. If a good night’s sleep or taking time to rest doesn’t make a noticeable difference in your energy levels, it’s time to consult a doctor to explore the potential causes.

4. Unexplained weight fluctuations

It’s not uncommon for a woman’s weight to naturally fluctuate, especially during their menstrual cycle. However, unexpected weight gain or loss can indicate hormonal imbalances, thyroid problems or metabolic disorders. When weight changes are sudden and not resulting from changes in your diet or exercise routine, it’s important to rule out any larger health issues, like cancer or chronic illness.

5. Chronic anxiety

Although anxiety is commonly associated with mental health disorders, its presence can also point to underlying physical health issues. If you’re feeling anxious without a clear reason, or your anxiety is constant, it’s important to explore whether a physical condition could be contributing. Anxiety is often linked to cardiovascular diseases and endocrine problems, like hyperthyroidism. Regardless of whether it stems from something physical or mental, early intervention is critical.

Your first call: A doctor

These symptoms may not always seem urgent, but it’s important not to ignore them, especially if they become persistent or chronic. “If you feel something is off with your health, trust your intuition and seek medical advice promptly,” Roundtree advises. “Doctors are here to help you get to the bottom of your symptoms — no matter how big or small they may seem.” When your instincts tell you something is off, you can schedule a virtual visit with an MD Live board-certified doctor to get an expert medical opinion without unnecessary delays.

Remember, it’s always better to address a potential health concern when it’s small rather than wait until it becomes more serious. The next time your ill-tuition kicks in, trust it.

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New JURA J8 twin makes coffee dreams come true with dual grinders, sweet foam function and more

2024-10-23T06:05:00

(BPT) – JURA, the global innovation leader in automatic coffee machines, introduces the JURA J8 twin, packed with technical innovations for an unparalleled coffee experience. With its two high-performance grinders, it can prepare 31 delicious specialties at the touch of the display. It also features JURA’s exclusive Sweet Foam function that flavors milk foam with a hint of syrup.

Dual Conical Grinders for Coffee Customization

The J8 twin can process two different coffee bean varieties thanks to the double bean hopper and two high-performance P.A.G.3+ conical grinders. It can prepare espresso in the morning and decaf at night or customize a personal blend of two different single-origin beans. The machine actively monitors grind consistency, which controls the aroma in the cup. Between preparations, the grinders remain in rest mode, extending their service life while ensuring consistently delectable flavor.

Sweet Foam Function

The J8 twin takes indulgence to a whole new level with the Sweet Foam function. Simply fill the included attachment with syrup, secure to the frother, and the system infuses the subtly sweet flavor evenly throughout the milk foam. Customize flavor and intensity, using your favorite syrup — amaretto, hazelnut, butterscotch, vanilla, gingerbread, tangerine, lavender, cherry — the flavor possibilities are endless!

Coffee Eye

An exclusive JURA innovation, the Coffee Eye is an intelligent cup sensor to ensure the cups are always placed under the correct spout for the chosen specialty.

Easy to Use and Tech-Ready

The Panorama Coffee Panel is the control center for the J8 twin. Operation is intuitive and includes an Easy Mode with slider controls. The machine features integrated Wi-Fi Connect and is compatible with J.O.E. (JURA Operating Experience), an exclusive free mobile app. J.O.E. allows users to personalize their favorite beverages, initiate brewing, view maintenance instructions and videos, and more.

JURA offers a full range of Accessory and Care Products. The best-selling Cool Control, a countertop milk cooler that connects to a JURA machine, keeps milk at the optimum temperature for preparing coffee specialties.

For more information, visit jura.com.

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One Patient’s Journey with Relapsed Diffuse Large B-Cell Lymphoma and What He Wants You to Know

2024-10-22T11:01:00

(BPT) – The word “cancer” can immediately turn someone’s world upside down. The six-letter word has the power to bring a flood of emotions with it – fear, anxiety and confusion. But learning about common symptoms to watch for and the impact of different types of cancer can help bring understanding and preparedness. That’s why Michael, an Ohio native living with an aggressive blood cancer known as diffuse large B-cell lymphoma (DLBCL), wants to share his story.

What to Know About This Type of Lymphoma

DLBCL is a type of aggressive, fast-growing non-Hodgkin’s lymphoma (NHL), a cancer that develops in the lymphatic system and affects B cells, a type of white blood cell.[1],[2] DLBCL is the most common subtype of NHL, with more than 18,000 people being diagnosed with this type of cancer each year in the U.S.[3] While DLBCL can occur at various ages, it is most frequently diagnosed among people aged 65-74.[4] The symptoms associated with DLBCL often resemble those of more common conditions, such as: enlarged lymph nodes, painless swelling in the neck, underarms or groin; unexplained weight loss; fatigue and/or lack of energy; and chills, fever and/or excessive sweating, often at night.[5],[6]

Despite being labeled as an “aggressive” cancer, DLBCL is curable for some.[7] However, about 30-40% of people with DLBCL develop relapsed or refractory (R/R) disease,[8] which means their cancer returns after initial treatments and/or their cancer stops responding to treatment.

People with R/R DLBCL experience significant treatment challenges, with outcomes worsening with each line of treatment.[9] The heartbreaking reality is that 1 in 3 patients will not survive 5 years after receiving a DLBCL diagnosis.[10]

How Michael Still Lives Life on His Own Terms

Michael, a 66-year-old, received the devastating diagnosis of DLBCL in 2016. He had coached softball and football for 32 years and loved being involved in his community, which had to be put on pause. Living with DLBCL can be difficult, especially for those who enjoy outdoor activities, as the disease can cause fatigue and/or lack of energy.

Adjusting to life with DLBCL can be hard, but thinking about how this would affect his children was even harder. “Not knowing if you have a tomorrow is a very unpleasant thing, and not knowing if you’ll be there for your family is even worse,” Michael shared. But he was able to push forward and finish treatment, driven by the desire to be there for his family and community. For five years, Michael was in remission.

In 2021, Michael’s cancer returned. He had gone through various treatments for his initial diagnosis already, including chemotherapy and radiation. But this time was different, and Michael would try several additional treatment options such as chemoimmunotherapy, CAR T therapy and a clinical trial.

Michael was also remarried now and had Kimberly in his life. Michael and Kimberly connected in 2018 after Kimberly came to watch her granddaughter’s soccer game that Michael was coaching. They fell in love and got married 6 months later. Kimberly became Michael’s Care Partner – a term used to refer to a “caregiver” who provides someone with physical and emotional support – and has been by his side for all aspects of his cancer treatment.

“Kimberly is a true blessing,” Michael said. “She is an absolute rock.” Kimberly acknowledged that Michael’s life with DLBCL had been challenging, but that they had many reasons to maintain hope. Her advice to others is to “think of treatments like water stations in a marathon: something may not be working, or may not work long term, but there can be something else ahead. Your health is not a sprint. It’s a marathon.” As it turned out, Michael was arriving at his next water station. He and his physician decided to try a bispecific antibody treatment known as EPKINLY® (epcoritamab-bysp) following his relapse.

Michael began treatment with EPKINLY in May 2023, and has been on it since. EPKINLY is the first and only subcutaneous bispecific antibody approved by the U.S. Food and Drug Administration to treat adults with certain types of DLBCL and high-grade B-cell lymphoma that has come back or that did not respond to previous treatment after receiving two or more treatments.[11] Treatment options are expanding, and EPKINLY offers a subcutaneous (just under the skin) injection option for patients living with this type of cancer.

Michael, along with his clinicians, noticed that he was responding to treatment well and said he is now in “a good place.” He enjoys every day he is able to spend time with Kimberly, his six daughters, and 10 grandchildren. Although Michael is still living with DLBCL, he shared that EPKINLY is helping to keep it under control – his bloodwork is normal, and his disease is stable. Michael’s physician also advised him to look out for certain signs and symptoms of infection during his treatment.

Michael’s journey with relapsed DLBCL has been ongoing for almost a decade, but with his support system and continued treatment with EPKINLY, Michael’s marathon continues.

What is EPKINLY?
EPKINLY is a prescription medicine used to treat adults with certain types of diffuse large B-cell lymphoma (DLBCL) and high-grade B-cell lymphoma that has come back or that did not respond to previous treatment after receiving 2 or more treatments. EPKINLY is approved based on patient response data. A study is ongoing to confirm the clinical benefit of EPKINLY. It is not known if EPKINLY is safe and effective in children.

IMPORTANT SAFETY INFORMATION

Important Warnings—EPKINLY can cause serious side effects, including:

  • Cytokine release syndrome (CRS), which is common during treatment with EPKINLY and can be serious or life-threatening. To help reduce your risk of CRS, you will receive EPKINLY on a step-up dosing schedule (when you receive 2 smaller step-up doses of EPKINLY before your first full dose during your first cycle of treatment), and you may also receive other medicines before and for 3 days after receiving EPKINLY. Your first full dose of EPKINLY will be given on day 15 of your first cycle of treatment and you should be hospitalized for 24 hours after due to the risk of CRS and neurologic problems. If your dose of EPKINLY is delayed for any reason, you may need to repeat the step-up dosing schedule.
  • Neurologic problems that can be life-threatening and lead to death. Neurologic problems may happen days or weeks after you receive EPKINLY.

Tell your healthcare provider or get medical help right away if you develop a fever of 100.4°F (38°C) or higher; dizziness or lightheadedness; trouble breathing; chills; fast heartbeat; feeling anxious; headache; confusion; shaking (tremors); problems with balance and movement, such as trouble walking; trouble speaking or writing; confusion and disorientation; drowsiness, tiredness or lack of energy; muscle weakness; seizures; or memory loss. These may be symptoms of CRS or neurologic problems. If you have any symptoms that impair consciousness, do not drive or use heavy machinery or do other dangerous activities until your symptoms go away.

EPKINLY can cause other serious side effects, including:

  • Infections that may lead to death. Your healthcare provider will check you for signs and symptoms of infection before and during treatment and treat you as needed if you develop an infection. You should receive medicines from your healthcare provider before you start treatment to help prevent infection. Tell your healthcare provider right away if you develop any symptoms of infection during treatment, including fever of 100.4°F (38°C) or higher, cough, chest pain, tiredness, shortness of breath, painful rash, sore throat, pain during urination, or feeling weak or generally unwell.
  • Low blood cell counts, which can be serious or severe. Your healthcare provider will check your blood cell counts during treatment. EPKINLY may cause low blood cell counts, including low white blood cells (neutropenia), which can increase your risk for infection; low red blood cells (anemia), which can cause tiredness and shortness of breath; and low platelets (thrombocytopenia), which can cause bruising or bleeding problems.

Your healthcare provider will monitor you for symptoms of CRS, neurologic problems, infections, and low blood cell counts during treatment with EPKINLY. Your healthcare provider may temporarily stop or completely stop treatment with EPKINLY if you develop certain side effects.

Before you receive EPKINLY, tell your healthcare provider about all your medical conditions, including if you have an infection, are pregnant or plan to become pregnant, or are breastfeeding or plan to breastfeed. If you receive EPKINLY while pregnant, it may harm your unborn baby. If you are a female who can become pregnant, your healthcare provider should do a pregnancy test before you start treatment with EPKINLY and you should use effective birth control (contraception) during treatment and for 4 months after your last dose of EPKINLY. Tell your healthcare provider if you become pregnant or think that you may be pregnant during treatment with EPKINLY. Do not breastfeed during treatment with EPKINLY and for 4 months after your last dose of EPKINLY.

The most common side effects of EPKINLY include CRS, tiredness, muscle and bone pain, injection site reactions, fever, stomach-area (abdominal) pain, nausea, and diarrhea. The most common severe abnormal laboratory test results include decreased white blood cells, decreased red blood cells, and decreased platelets.

These are not all of the possible side effects of EPKINLY. Call your doctor for medical advice about side effects. You are encouraged to report side effects to the FDA at (800) FDA-1088 or www.fda.gov/medwatch or to Genmab US, Inc. at 1-855-4GENMAB (1-855-443-6622).

Please see Medication Guide, including Important Warnings.

Please click to see Important Facts about EPKINLY, including Important Warnings for cytokine release syndrome and neurologic problems.

If you or someone you know has R/R DLBCL, speak with your doctor about potential therapies, including EPKINLY.

For more information, please visit epkinly.com.

COM-US-EPK-0001012

[1] Lymphoma Coalition. https://lymphomacoalition.org/what-is-lymphoma/. Accessed April 2024.

[2] Sehn LH, Salles G. N Engl J Med. 2021;384:842-858.

[3] Lymphoma Research Foundation. https://lymphoma.org/understanding-lymphoma/aboutlymphoma/nhl/dlbcl/. Accessed April 2024.

[4] National Cancer Institute SEER. https://seer.cancer.gov/statfacts/html/dlbcl.html. Accessed April 2024.

[5] About Lymphoma and Lymphoma Subtypes. Lymphoma Research Foundation. https://lymphoma.org/understanding-lymphoma/aboutlymphoma/. Accessed February 2024.

[6] Signs & Symptoms. Lymphoma Coalition. https://lymphomacoalition.org/signs-symptoms/. Accessed February 2024.

[7] Lymphoma Research Foundation. https://lymphoma.org/understanding-lymphoma/aboutlymphoma/nhl/dlbcl/. Accessed April 2024.

[8] Cassandra Duarte et al., Management Considerations for Patients With Primary Refractory and Early Relapsed Diffuse Large B-Cell Lymphoma. Am Soc Clin Oncol Educ Book 43, e390802(2023).

[9] Ekberg, S., Crowther, M., Harrysson, S. et al. Patient trajectories after diagnosis of diffuse large B-cell lymphoma—a multistate modelling approach to estimate the chance of lasting remission. Br J Cancer 127, 1642–1649 (2022). https://doi.org/10.1038/s41416-022-01931-2

[10] National Cancer Institute SEER. https://seer.cancer.gov/statfacts/html/dlbcl.html. Accessed May 2024.

[11] EPKINLY [package insert].

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Chronic stomach pain leads to a rare disease diagnosis

2024-10-22T08:21:00

(BPT) – Stomach pain, nausea and brain fog can be uncomfortable to experience. Imagine living with these symptoms every day without knowing their cause or being able to manage and rid yourself of them.

This was Aaron’s experience; he spent decades living with debilitating, daily pain — sometimes so severe he needed to be hospitalized — before finally receiving an accurate medical diagnosis. Now, Aaron knows that he is living with familial chylomicronemia syndrome, or FCS, which is a rare, genetic condition that can lead to potentially life-threatening acute pancreatitis (painful inflammation of the pancreas.)

Journey to diagnosis

“As a young kid, I would battle stomach pain so intense that it would cause me to miss school for weeks at a time,” Aaron shares. He saw doctor after doctor and was repeatedly told to “eat better and exercise more.”

“I tried five different types of diets and kept food journals to show my doctors I was following their advice. But I still found no relief — I’d have excruciating, crippling pain for four or five straight days over and over again with no relief.” This lasted for decades.

Aaron finally received an answer at age 36 when he was diagnosed with FCS.

Understanding FCS

During a doctor’s appointment with a specialist, Aaron was told his triglyceride levels — a type of fat that the body uses as a source of energy — had been over 1,200 mg/dL since his childhood. While healthy levels for adults are typically below 150 mg/dL, levels higher than 500 mg/dL are a sign of a common condition called severe hypertriglyceridemia (sHTG), which can lead to health complications such as damage to the pancreas.

Triglyceride levels of more than 880 mg/dL — like Aaron experiences — may be an indication of FCS, a rare, genetic form of sHTG. In addition to the risk of potentially life-threatening acute pancreatitis, people living with FCS also experience chronic health issues such as fatigue, brain fog and severe, recurrent abdominal pain.

After 36 years of struggle, Aaron’s diagnosis helped him make sense of his lifelong symptoms. “The first thing I felt upon receiving my diagnosis was validation that my pain had a real, medical cause.”

Living with FCS

FCS can be associated with physical, mental, emotional and financial burdens, which can cause people to feel overwhelmed and have a significant impact on their quality of life. “On my best days, I feel like I have the flu — body aches, nausea, diarrhea, headache and a foggy brain. On my worst days, I’m hospitalized for two to three weeks with pancreatitis,” explains Aaron.

To help manage symptoms, people living with FCS must adhere to an extremely strict diet. This involves limiting daily fat intake to less than 15 to 20 grams — that’s roughly equal to just one tablespoon of olive oil per day. “I’ve had to learn to adjust my social life so that events don’t always revolve around food, and the unfortunate reality is that I just may not be able to participate,” says Aaron.

Raising awareness and aiding in earlier diagnosis of this rare disease is important to Aaron. His hope for the future is that people living with FCS don’t feel the loneliness he lived with for too long. “I’ve made a conscious decision to not let having FCS control my outlook on life. I choose to be happy, and my hope in sharing my story is to normalize FCS so that the next person may not have to wait 36 years to find a diagnosis and won’t feel so alone.”

The article shares the story of one person and may not be representative of all patient journeys. If you have questions about your health, speak with your doctor. To learn more about FCS and helpful resources, including taking a signs and symptoms quiz that can provide useful information to guide your discussion with a doctor, visit www.KnowYourTGs.com.

References:
  1. Moulin P, Dufour R, Averna M, et al. Identification and diagnosis of patients with familial chylomicronaemia syndrome (FCS): Expert panel recommendations and proposal of an “FCS score”. Atherosclerosis. 2018;275:265-272.
  2. Chyzhyk V, Brown AS. Familial chylomicronemia syndrome: A rare but devastating autosomal recessive disorder characterized by refractory hypertriglyceridemia and recurrent pancreatitis. Trends Cardiovasc Med. 2020;30(2):80-85.
  3. Christian JB, Bourgeois N, Snipes R, Lowe KA. Prevalence of severe (500 to 2,000 mg/dl) hypertriglyceridemia in United States adults. Am J Cardiol. 2011;107(6):891-897.
  4. Davidson M, Stevenson M, Hsieh A, et al. The burden of familial chylomicronemia syndrome: Results from the global IN-FOCUS study. J Clin Lipidol. 2018;12(4):898-907.e2.